Oh, dear. Oh, well.

Thanks to a discussion in my epilepsy community about the extreme sensitivities for many epileptics, I now realize that yes, anything that upsets me, stresses me, bothers me, worries me, irritates me, and creeps me out may possibly cause a seizure. That means talking about something that bothers me, seeing something that upsets me, being yelled at, thinking something bad is happening...
*pause*
Gods, that sounds... overwhelming. I don't know. I had no idea about any of that. I really don't think I'm that sensitive. But I can only imagine how it feels for people who are.
What the fuck. I think this means I need a thicker skin. And a yoga class. I need to learn how to sit in the lotus position someday anyway.
This all came about when a woman said that her son would seize whenever someone actually asked him if he had had a seizure -- just the simple word would set him off. She wanted to know if perhaps hypnotherapy might help.
A direct quote from timee, one of the members: "Sometimes certain subjects that are very touchy can cause an emotional reaction. Stress is a big trigger and getting asked directly about something that is partically a sensitive subject can cause a huge jolt of adrenaline. Most people with seizures don't want to be asked about them."
Adrenaline, huh? Crap.
Although, that hypnotherapy idea sounds good.

Oh, dear. Oh, well.

Thanks to a discussion in my epilepsy community about the extreme sensitivities for many epileptics, I now realize that yes, anything that upsets me, stresses me, bothers me, worries me, irritates me, and creeps me out may possibly cause a seizure. That means talking about something that bothers me, seeing something that upsets me, being yelled at, thinking something bad is happening...
*pause*
Gods, that sounds... overwhelming. I don't know. I had no idea about any of that. I really don't think I'm that sensitive. But I can only imagine how it feels for people who are.
What the fuck. I think this means I need a thicker skin. And a yoga class. I need to learn how to sit in the lotus position someday anyway.
This all came about when a woman said that her son would seize whenever someone actually asked him if he had had a seizure -- just the simple word would set him off. She wanted to know if perhaps hypnotherapy might help.
A direct quote from timee, one of the members: "Sometimes certain subjects that are very touchy can cause an emotional reaction. Stress is a big trigger and getting asked directly about something that is partically a sensitive subject can cause a huge jolt of adrenaline. Most people with seizures don't want to be asked about them."
Adrenaline, huh? Crap.
Although, that hypnotherapy idea sounds good.

Oh, dear. Oh, well.

Thanks to a discussion in my epilepsy community about the extreme sensitivities for many epileptics, I now realize that yes, anything that upsets me, stresses me, bothers me, worries me, irritates me, and creeps me out may possibly cause a seizure. That means talking about something that bothers me, seeing something that upsets me, being yelled at, thinking something bad is happening...
*pause*
Gods, that sounds... overwhelming. I don't know. I had no idea about any of that. I really don't think I'm that sensitive. But I can only imagine how it feels for people who are.
What the fuck. I think this means I need a thicker skin. And a yoga class. I need to learn how to sit in the lotus position someday anyway.
This all came about when a woman said that her son would seize whenever someone actually asked him if he had had a seizure -- just the simple word would set him off. She wanted to know if perhaps hypnotherapy might help.
A direct quote from timee, one of the members: "Sometimes certain subjects that are very touchy can cause an emotional reaction. Stress is a big trigger and getting asked directly about something that is partically a sensitive subject can cause a huge jolt of adrenaline. Most people with seizures don't want to be asked about them."
Adrenaline, huh? Crap.
Although, that hypnotherapy idea sounds good.

*raises eyebrows*

http://www.faqfarm.com/Q/Is_there_a_link_between_ADD_and_epilepsy

*raises eyebrows*

http://www.faqfarm.com/Q/Is_there_a_link_between_ADD_and_epilepsy

*raises eyebrows*

http://www.faqfarm.com/Q/Is_there_a_link_between_ADD_and_epilepsy

Thirty minutes earlier...

I will not have a panic attack turn into a seizure. I will not have a panic attack turn into a seizure. I will not have a panic attack turn into a seizure.

Whoops. There goes the out of body sensation and the spinning sensation. And now the roller coaster going down sensation. Wheee.
Oh, look, my brain is gray and tilty. Hi, seizure! How are you?

Trileptal (and Bacopa) stepping up and kicking ass, yay...

Breathe breathe breathe.
Take long drinks of water.

Okay, now I'm fine.
It seems that as long as this drug is in my system, it will kick in when my brain gets overwhelmed and attempt to battle a seizure in progress as well as attempt to block any oncoming seizures. Attempt being the operative word. Nothing's perfect. But it gives me a modus operandi and a good bit more than a modicum of control where previously there was... not much. It really seems to like working with the Bacopa. Go figure. I shall mention this to the doctor.

Ain't it grand when your brain tries to go to war with itself?

A good quote from pandora in epileptics:
"...basically anything that's gone wrong as far as mental illness most probably relates to epilepsy. the stats say that 50 percent of people with epilepsy have a dual diagnosis of either depression or bipolar disorder. it makes sense. Situationally, epilepsy is depressing enough, especially upon first diagnosis, and after a seizure (particularly seizures that originate in the temporal lobe, because the amygdala is there [which controls emotion]). That's due both in part to having to experience the seizure...and having your emotions screwed with as a result of the area of the brain it hit."

So it's not just me. And there really is a reason why, after certain episodes, I feel like running screaming into and up a wall and then curling up crying in a corner. Epilepsy and bipolar are more similar than I'd thought. Huh.

Thirty minutes earlier...

I will not have a panic attack turn into a seizure. I will not have a panic attack turn into a seizure. I will not have a panic attack turn into a seizure.

Whoops. There goes the out of body sensation and the spinning sensation. And now the roller coaster going down sensation. Wheee.
Oh, look, my brain is gray and tilty. Hi, seizure! How are you?

Trileptal (and Bacopa) stepping up and kicking ass, yay...

Breathe breathe breathe.
Take long drinks of water.

Okay, now I'm fine.
It seems that as long as this drug is in my system, it will kick in when my brain gets overwhelmed and attempt to battle a seizure in progress as well as attempt to block any oncoming seizures. Attempt being the operative word. Nothing's perfect. But it gives me a modus operandi and a good bit more than a modicum of control where previously there was... not much. It really seems to like working with the Bacopa. Go figure. I shall mention this to the doctor.

Ain't it grand when your brain tries to go to war with itself?

A good quote from pandora in epileptics:
"...basically anything that's gone wrong as far as mental illness most probably relates to epilepsy. the stats say that 50 percent of people with epilepsy have a dual diagnosis of either depression or bipolar disorder. it makes sense. Situationally, epilepsy is depressing enough, especially upon first diagnosis, and after a seizure (particularly seizures that originate in the temporal lobe, because the amygdala is there [which controls emotion]). That's due both in part to having to experience the seizure...and having your emotions screwed with as a result of the area of the brain it hit."

So it's not just me. And there really is a reason why, after certain episodes, I feel like running screaming into and up a wall and then curling up crying in a corner. Epilepsy and bipolar are more similar than I'd thought. Huh.

Thirty minutes earlier...

I will not have a panic attack turn into a seizure. I will not have a panic attack turn into a seizure. I will not have a panic attack turn into a seizure.

Whoops. There goes the out of body sensation and the spinning sensation. And now the roller coaster going down sensation. Wheee.
Oh, look, my brain is gray and tilty. Hi, seizure! How are you?

Trileptal (and Bacopa) stepping up and kicking ass, yay...

Breathe breathe breathe.
Take long drinks of water.

Okay, now I'm fine.
It seems that as long as this drug is in my system, it will kick in when my brain gets overwhelmed and attempt to battle a seizure in progress as well as attempt to block any oncoming seizures. Attempt being the operative word. Nothing's perfect. But it gives me a modus operandi and a good bit more than a modicum of control where previously there was... not much. It really seems to like working with the Bacopa. Go figure. I shall mention this to the doctor.

Ain't it grand when your brain tries to go to war with itself?

A good quote from pandora in epileptics:
"...basically anything that's gone wrong as far as mental illness most probably relates to epilepsy. the stats say that 50 percent of people with epilepsy have a dual diagnosis of either depression or bipolar disorder. it makes sense. Situationally, epilepsy is depressing enough, especially upon first diagnosis, and after a seizure (particularly seizures that originate in the temporal lobe, because the amygdala is there [which controls emotion]). That's due both in part to having to experience the seizure...and having your emotions screwed with as a result of the area of the brain it hit."

So it's not just me. And there really is a reason why, after certain episodes, I feel like running screaming into and up a wall and then curling up crying in a corner. Epilepsy and bipolar are more similar than I'd thought. Huh.

Did you know?

"Did you know? Saint Valentine is the patron saint of epilepsy."
http://www.epilepsyfoundation.org/epilepsyusa/valentine.cfm

So he doesn't just bring chocolates and flowers to good boys and girls who want to kiss each other? Awww.

You know, that reminds me: When folks way back when thought that seizures were caused by demons and possession, they used to yell in the face of the person having the problem. Used to demand that the "demon" go away. That actually does work sometimes. Scares the brain nice and straight.

Did you know?

"Did you know? Saint Valentine is the patron saint of epilepsy."
http://www.epilepsyfoundation.org/epilepsyusa/valentine.cfm

So he doesn't just bring chocolates and flowers to good boys and girls who want to kiss each other? Awww.

You know, that reminds me: When folks way back when thought that seizures were caused by demons and possession, they used to yell in the face of the person having the problem. Used to demand that the "demon" go away. That actually does work sometimes. Scares the brain nice and straight.

Did you know?

"Did you know? Saint Valentine is the patron saint of epilepsy."
http://www.epilepsyfoundation.org/epilepsyusa/valentine.cfm

So he doesn't just bring chocolates and flowers to good boys and girls who want to kiss each other? Awww.

You know, that reminds me: When folks way back when thought that seizures were caused by demons and possession, they used to yell in the face of the person having the problem. Used to demand that the "demon" go away. That actually does work sometimes. Scares the brain nice and straight.

Meeeeep!

Yeah... I felt like this all day

Meeeeep!

Yeah... I felt like this all day

Meeeeep!

Yeah... I felt like this all day