Feb. 6th, 2009

Less Pain

Feb. 6th, 2009 07:31 am
brightrosefox: (Default)
I actually woke up in much less pain.
Fantastic!
I never expect to wake up one day with no fibro anymore ever, but mornings like this are always lovely.
The higher dosage of Trileptal seems to be working very well. I get flares, still, but that is part and parcel of the disorder. It's taken a couple of months for the higher dosage to really kick in, but the worst of the pain has lessened and the flares are starting to become fewer and farther between. This is quite nice.
I don't post about everything that is happening, naturally, but I am pleased to post that things have been improving.
I imagine I'll have a flare-up soon again, but judging from how my body has reacted over the last week or two, it will be a moderate one, perhaps even mild. My neurologist and my physician are as pleased as I am.
(I am a bit frustrated when people from forums email me demanding -- demanding -- to know why I am not on Lyrica or Cymbalta or any drug that has been "officially FDA approved to treat fibromyalgia." When I explain that those drugs were once used off-label and not officially FDA approved, and that the drug I am currently taking is also being used off-label, they back down. I also explain that my doctors think it is pointless for me to be on two or three similar drugs when the one drug at a higher dosage is working.)

Less Pain

Feb. 6th, 2009 07:31 am
brightrosefox: (Default)
I actually woke up in much less pain.
Fantastic!
I never expect to wake up one day with no fibro anymore ever, but mornings like this are always lovely.
The higher dosage of Trileptal seems to be working very well. I get flares, still, but that is part and parcel of the disorder. It's taken a couple of months for the higher dosage to really kick in, but the worst of the pain has lessened and the flares are starting to become fewer and farther between. This is quite nice.
I don't post about everything that is happening, naturally, but I am pleased to post that things have been improving.
I imagine I'll have a flare-up soon again, but judging from how my body has reacted over the last week or two, it will be a moderate one, perhaps even mild. My neurologist and my physician are as pleased as I am.
(I am a bit frustrated when people from forums email me demanding -- demanding -- to know why I am not on Lyrica or Cymbalta or any drug that has been "officially FDA approved to treat fibromyalgia." When I explain that those drugs were once used off-label and not officially FDA approved, and that the drug I am currently taking is also being used off-label, they back down. I also explain that my doctors think it is pointless for me to be on two or three similar drugs when the one drug at a higher dosage is working.)

Less Pain

Feb. 6th, 2009 07:31 am
brightrosefox: (Default)
I actually woke up in much less pain.
Fantastic!
I never expect to wake up one day with no fibro anymore ever, but mornings like this are always lovely.
The higher dosage of Trileptal seems to be working very well. I get flares, still, but that is part and parcel of the disorder. It's taken a couple of months for the higher dosage to really kick in, but the worst of the pain has lessened and the flares are starting to become fewer and farther between. This is quite nice.
I don't post about everything that is happening, naturally, but I am pleased to post that things have been improving.
I imagine I'll have a flare-up soon again, but judging from how my body has reacted over the last week or two, it will be a moderate one, perhaps even mild. My neurologist and my physician are as pleased as I am.
(I am a bit frustrated when people from forums email me demanding -- demanding -- to know why I am not on Lyrica or Cymbalta or any drug that has been "officially FDA approved to treat fibromyalgia." When I explain that those drugs were once used off-label and not officially FDA approved, and that the drug I am currently taking is also being used off-label, they back down. I also explain that my doctors think it is pointless for me to be on two or three similar drugs when the one drug at a higher dosage is working.)
brightrosefox: (Default)
But... I don't want arthritis and tendinitis in my knees.
Ah, well.
Mild cases, anyway.
I will do what I have to do.
Really, I am not surprised whatsoever. This has been building and a long time coming. Hello, body, I know you. Shit happens.
I did not have a fibro flare at all, not even a spike. Goodness.
I see the chiropractor tomorrow. I will ask for the ultrasound again. My lower back and my shoulders and my neck loved that last week. He adjusted me, too, and I've been able to actually sleep on my back for more than five minutes at a time without agony. Woo.

Now that the higher dose of Trileptal has taken full effect, I feel... happier. Just happier.
I love the look of that word, happier. I love the feel of it on my skin, on my tongue, in my nerves, the way it rolls around in my brain. That's what words and sounds do, they fill all my senses until I am covered in sounds that feel like various things, depending. Silk, velvet, satin, denim, corduroy, mud, ink, sand, glass, metal, cloth, plastic, fur, skin, cotton, water, paper.
I also feel relaxed. Rrreeelllaaaxxxedd. Purr. The word feels like the murmur of a content kitten.
My body, my muscles, nice and loose. For now. No Soma. Just me. Not completely loose, but well enough.

I should stop reacting to people who think they know what is best for me, when they don't know me.

Adam made sauteed salmon, and we mixed it up in a salad with baby spinach, baby arugula, olives, artichoke, cucumbers, cherry tomatoes, mushrooms, and olive oil. It was amazing.
brightrosefox: (Default)
But... I don't want arthritis and tendinitis in my knees.
Ah, well.
Mild cases, anyway.
I will do what I have to do.
Really, I am not surprised whatsoever. This has been building and a long time coming. Hello, body, I know you. Shit happens.
I did not have a fibro flare at all, not even a spike. Goodness.
I see the chiropractor tomorrow. I will ask for the ultrasound again. My lower back and my shoulders and my neck loved that last week. He adjusted me, too, and I've been able to actually sleep on my back for more than five minutes at a time without agony. Woo.

Now that the higher dose of Trileptal has taken full effect, I feel... happier. Just happier.
I love the look of that word, happier. I love the feel of it on my skin, on my tongue, in my nerves, the way it rolls around in my brain. That's what words and sounds do, they fill all my senses until I am covered in sounds that feel like various things, depending. Silk, velvet, satin, denim, corduroy, mud, ink, sand, glass, metal, cloth, plastic, fur, skin, cotton, water, paper.
I also feel relaxed. Rrreeelllaaaxxxedd. Purr. The word feels like the murmur of a content kitten.
My body, my muscles, nice and loose. For now. No Soma. Just me. Not completely loose, but well enough.

I should stop reacting to people who think they know what is best for me, when they don't know me.

Adam made sauteed salmon, and we mixed it up in a salad with baby spinach, baby arugula, olives, artichoke, cucumbers, cherry tomatoes, mushrooms, and olive oil. It was amazing.
brightrosefox: (Default)
But... I don't want arthritis and tendinitis in my knees.
Ah, well.
Mild cases, anyway.
I will do what I have to do.
Really, I am not surprised whatsoever. This has been building and a long time coming. Hello, body, I know you. Shit happens.
I did not have a fibro flare at all, not even a spike. Goodness.
I see the chiropractor tomorrow. I will ask for the ultrasound again. My lower back and my shoulders and my neck loved that last week. He adjusted me, too, and I've been able to actually sleep on my back for more than five minutes at a time without agony. Woo.

Now that the higher dose of Trileptal has taken full effect, I feel... happier. Just happier.
I love the look of that word, happier. I love the feel of it on my skin, on my tongue, in my nerves, the way it rolls around in my brain. That's what words and sounds do, they fill all my senses until I am covered in sounds that feel like various things, depending. Silk, velvet, satin, denim, corduroy, mud, ink, sand, glass, metal, cloth, plastic, fur, skin, cotton, water, paper.
I also feel relaxed. Rrreeelllaaaxxxedd. Purr. The word feels like the murmur of a content kitten.
My body, my muscles, nice and loose. For now. No Soma. Just me. Not completely loose, but well enough.

I should stop reacting to people who think they know what is best for me, when they don't know me.

Adam made sauteed salmon, and we mixed it up in a salad with baby spinach, baby arugula, olives, artichoke, cucumbers, cherry tomatoes, mushrooms, and olive oil. It was amazing.

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