Jun. 8th, 2009

brightrosefox: (Default)
My doctor is a sweetheart. I went in this morning for my physical exam and Pap smear, and Doctor Carolyn asked how I was, all things considered. I told her I generally felt twice my age, physically, what with [list of medical conditions]. Her face grew more and more empathetic and sad with each word. When I mentioned migraines, she was surprised, since I hadn't mentioned those before. She wrote it on my chart. I told her that the migraines were all tied up with the fibromyalgia and the cerebral palsy and especially the epilepsy. She told me that I'd had had a long hard blow dealt in life but I was dealing with it so well. She moved her hands over my back and torso gently, asking if it hurt at all. I told her that it was all just the baseline fibro pain, and she nodded sympathetically. We went over my list of prescriptions. She was pleased that the Soma was working so well for me three times a week.

I've been dead exhausted all day. I'd forgotten my morning supplement cocktail and realized that I could feel it intensely after leaving the doctor's office. I drank as much green tea as I could all afternoon at work. It helped a bit.

Evening supplements and seizure pill taken. Time to clean the litter boxes. Then I will spend relax time with the husband.
brightrosefox: (Default)
My doctor is a sweetheart. I went in this morning for my physical exam and Pap smear, and Doctor Carolyn asked how I was, all things considered. I told her I generally felt twice my age, physically, what with [list of medical conditions]. Her face grew more and more empathetic and sad with each word. When I mentioned migraines, she was surprised, since I hadn't mentioned those before. She wrote it on my chart. I told her that the migraines were all tied up with the fibromyalgia and the cerebral palsy and especially the epilepsy. She told me that I'd had had a long hard blow dealt in life but I was dealing with it so well. She moved her hands over my back and torso gently, asking if it hurt at all. I told her that it was all just the baseline fibro pain, and she nodded sympathetically. We went over my list of prescriptions. She was pleased that the Soma was working so well for me three times a week.

I've been dead exhausted all day. I'd forgotten my morning supplement cocktail and realized that I could feel it intensely after leaving the doctor's office. I drank as much green tea as I could all afternoon at work. It helped a bit.

Evening supplements and seizure pill taken. Time to clean the litter boxes. Then I will spend relax time with the husband.
brightrosefox: (Default)
My doctor is a sweetheart. I went in this morning for my physical exam and Pap smear, and Doctor Carolyn asked how I was, all things considered. I told her I generally felt twice my age, physically, what with [list of medical conditions]. Her face grew more and more empathetic and sad with each word. When I mentioned migraines, she was surprised, since I hadn't mentioned those before. She wrote it on my chart. I told her that the migraines were all tied up with the fibromyalgia and the cerebral palsy and especially the epilepsy. She told me that I'd had had a long hard blow dealt in life but I was dealing with it so well. She moved her hands over my back and torso gently, asking if it hurt at all. I told her that it was all just the baseline fibro pain, and she nodded sympathetically. We went over my list of prescriptions. She was pleased that the Soma was working so well for me three times a week.

I've been dead exhausted all day. I'd forgotten my morning supplement cocktail and realized that I could feel it intensely after leaving the doctor's office. I drank as much green tea as I could all afternoon at work. It helped a bit.

Evening supplements and seizure pill taken. Time to clean the litter boxes. Then I will spend relax time with the husband.
brightrosefox: (Default)
Stuff that people have asked about recently:

Tangerine Dream is one of my favorite bands ever. When I was eighteen, I decided I'd collect every single song they ever played. They have over one hundred studio albums, excluding compilations. That is... many many hundreds of songs. Possibly thousands of songs. Twelve years later, I am still collecting.
Interestingly enough, my favorite album is The Dream Mixes One (featuring "Little Blond In The Park Of Attractions Thai Dub" ) -- it's my writing soundtrack.

Having sensory processing disorder is an indescribable thing, because it is too much a part of me. For those who really want to know, I have Type I - Sensory Modulation Disorder, which includes Sensory Defensiveness. I am especially hypersensitive. It came with the package of cerebral palsy. This may or may not have contributed to my mild synesthesia. I tend to annoy my friends with what seems like complaints, but to me they are genuine concerns.

In my skin care routine, my staple ingredients include Tamanu oil, Sea Buckthorn oil, Camellia oil, Grapeseed oil, Avocado oil, Virgin Coconut oil, Shea butter, Green Tea extract, Calendula oil, and Neem oil. Almost all of these ingredients are exotic, costly, and hard to find, which is why Vicki is so wonderful.

If I had to pick just one supplement to take every day, above all others, I would choose MSM. It has honestly helped as long as I am consistent with therapeutic doses. If skeptics tell me it doesn't work, I just shrug and say that it works for me and that's what I care about.

If I could alter one superficial physical trait about myself, I would want to be three inches taller. My actual height has me barely skimming above four feet eleven inches, thanks to the issues with spastic cerebral palsy, lordosis, mild scoliosis, and a left leg that is shorter than the right leg. I would be ecstatic to be just over five feet tall. I envy every person who stands even a hair over five feet.

Some people who hear my speaking voice do not equate it with my size and appearance. They expect me to sound child-like. When I was seventeen, a physical therapist remarked that I looked fifteen and sounded thirty.

Some people can tell that I have mild cerebral palsy just from hearing me speak. The speech problems happen most severely when my trigger points are hit: when I am in extreme pain, or very tired or stressed, or my physical trigger points are hit during a massage. In fact, my husband has told me that I can display symptoms of very severe cerebral palsy if I am triggered, and my seizure threshold plummets and nearly vanishes. This is partly why I must rest when I am fatigued, no matter where I am or what I am doing.

Bed now.
brightrosefox: (Default)
Stuff that people have asked about recently:

Tangerine Dream is one of my favorite bands ever. When I was eighteen, I decided I'd collect every single song they ever played. They have over one hundred studio albums, excluding compilations. That is... many many hundreds of songs. Possibly thousands of songs. Twelve years later, I am still collecting.
Interestingly enough, my favorite album is The Dream Mixes One (featuring "Little Blond In The Park Of Attractions Thai Dub" ) -- it's my writing soundtrack.

Having sensory processing disorder is an indescribable thing, because it is too much a part of me. For those who really want to know, I have Type I - Sensory Modulation Disorder, which includes Sensory Defensiveness. I am especially hypersensitive. It came with the package of cerebral palsy. This may or may not have contributed to my mild synesthesia. I tend to annoy my friends with what seems like complaints, but to me they are genuine concerns.

In my skin care routine, my staple ingredients include Tamanu oil, Sea Buckthorn oil, Camellia oil, Grapeseed oil, Avocado oil, Virgin Coconut oil, Shea butter, Green Tea extract, Calendula oil, and Neem oil. Almost all of these ingredients are exotic, costly, and hard to find, which is why Vicki is so wonderful.

If I had to pick just one supplement to take every day, above all others, I would choose MSM. It has honestly helped as long as I am consistent with therapeutic doses. If skeptics tell me it doesn't work, I just shrug and say that it works for me and that's what I care about.

If I could alter one superficial physical trait about myself, I would want to be three inches taller. My actual height has me barely skimming above four feet eleven inches, thanks to the issues with spastic cerebral palsy, lordosis, mild scoliosis, and a left leg that is shorter than the right leg. I would be ecstatic to be just over five feet tall. I envy every person who stands even a hair over five feet.

Some people who hear my speaking voice do not equate it with my size and appearance. They expect me to sound child-like. When I was seventeen, a physical therapist remarked that I looked fifteen and sounded thirty.

Some people can tell that I have mild cerebral palsy just from hearing me speak. The speech problems happen most severely when my trigger points are hit: when I am in extreme pain, or very tired or stressed, or my physical trigger points are hit during a massage. In fact, my husband has told me that I can display symptoms of very severe cerebral palsy if I am triggered, and my seizure threshold plummets and nearly vanishes. This is partly why I must rest when I am fatigued, no matter where I am or what I am doing.

Bed now.
brightrosefox: (Default)
Stuff that people have asked about recently:

Tangerine Dream is one of my favorite bands ever. When I was eighteen, I decided I'd collect every single song they ever played. They have over one hundred studio albums, excluding compilations. That is... many many hundreds of songs. Possibly thousands of songs. Twelve years later, I am still collecting.
Interestingly enough, my favorite album is The Dream Mixes One (featuring "Little Blond In The Park Of Attractions Thai Dub" ) -- it's my writing soundtrack.

Having sensory processing disorder is an indescribable thing, because it is too much a part of me. For those who really want to know, I have Type I - Sensory Modulation Disorder, which includes Sensory Defensiveness. I am especially hypersensitive. It came with the package of cerebral palsy. This may or may not have contributed to my mild synesthesia. I tend to annoy my friends with what seems like complaints, but to me they are genuine concerns.

In my skin care routine, my staple ingredients include Tamanu oil, Sea Buckthorn oil, Camellia oil, Grapeseed oil, Avocado oil, Virgin Coconut oil, Shea butter, Green Tea extract, Calendula oil, and Neem oil. Almost all of these ingredients are exotic, costly, and hard to find, which is why Vicki is so wonderful.

If I had to pick just one supplement to take every day, above all others, I would choose MSM. It has honestly helped as long as I am consistent with therapeutic doses. If skeptics tell me it doesn't work, I just shrug and say that it works for me and that's what I care about.

If I could alter one superficial physical trait about myself, I would want to be three inches taller. My actual height has me barely skimming above four feet eleven inches, thanks to the issues with spastic cerebral palsy, lordosis, mild scoliosis, and a left leg that is shorter than the right leg. I would be ecstatic to be just over five feet tall. I envy every person who stands even a hair over five feet.

Some people who hear my speaking voice do not equate it with my size and appearance. They expect me to sound child-like. When I was seventeen, a physical therapist remarked that I looked fifteen and sounded thirty.

Some people can tell that I have mild cerebral palsy just from hearing me speak. The speech problems happen most severely when my trigger points are hit: when I am in extreme pain, or very tired or stressed, or my physical trigger points are hit during a massage. In fact, my husband has told me that I can display symptoms of very severe cerebral palsy if I am triggered, and my seizure threshold plummets and nearly vanishes. This is partly why I must rest when I am fatigued, no matter where I am or what I am doing.

Bed now.

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