I am the pain, the pain is me. And such.

Oh, bad day, bad, bad day. No. Not really. Bad flare, really. Bad timing. I am profoundly grateful that Adam came home this morning to help me. I am forcing myself to stay awake and alert just because I do not know what will happen if I were to lie down and close my eyes. I did lie down, for a few minutes, and Luna was so concerned that she stopped in the middle of her meal, jumped onto the bed, nuzzled me, and settled in by my side, purring as loudly as she could, nudging me and making small chirping noises. When your cat gets upset upon seeing you, you know you are not doing so well.

From Facebook:
Oh, today has been vicious. I desperately want an excuse for extreme fatigue and pain beyond all reason, rhyme, rationality, reality, or rights. The only reason I am upright is because of pills like carisoprodol and codeine, alongside yerba mate and force of will. I had to crawl up the stairs. Do you know what that's like? To be so fucking drained that you can't manage twelve steps without collapsing? For no real reason beyond your body falling apart? If you do, I tip my hat and blow a kiss to you, and if you don't you are very lucky.
So, how are you today anyway?

It has gotten to the point where my sensory perception is too skewed for me to be of much use to anyone. My proprioception and exteroception are intensely impaired and because of this I have put myself on a seizure watch. I have very little equilibrioception right now. I don't know how long I've been typing for. I am leaning against a pillow and I can feel my body swaying. I don't want to sleep just yet.

I will feel better later. I always do. But later always seems far away and my thinking is full of fog.

In conclusion, fibromyalgia and cerebral palsy are hideous monsters.

I am the pain, the pain is me. And such.

Oh, bad day, bad, bad day. No. Not really. Bad flare, really. Bad timing. I am profoundly grateful that Adam came home this morning to help me. I am forcing myself to stay awake and alert just because I do not know what will happen if I were to lie down and close my eyes. I did lie down, for a few minutes, and Luna was so concerned that she stopped in the middle of her meal, jumped onto the bed, nuzzled me, and settled in by my side, purring as loudly as she could, nudging me and making small chirping noises. When your cat gets upset upon seeing you, you know you are not doing so well.

From Facebook:
Oh, today has been vicious. I desperately want an excuse for extreme fatigue and pain beyond all reason, rhyme, rationality, reality, or rights. The only reason I am upright is because of pills like carisoprodol and codeine, alongside yerba mate and force of will. I had to crawl up the stairs. Do you know what that's like? To be so fucking drained that you can't manage twelve steps without collapsing? For no real reason beyond your body falling apart? If you do, I tip my hat and blow a kiss to you, and if you don't you are very lucky.
So, how are you today anyway?

It has gotten to the point where my sensory perception is too skewed for me to be of much use to anyone. My proprioception and exteroception are intensely impaired and because of this I have put myself on a seizure watch. I have very little equilibrioception right now. I don't know how long I've been typing for. I am leaning against a pillow and I can feel my body swaying. I don't want to sleep just yet.

I will feel better later. I always do. But later always seems far away and my thinking is full of fog.

In conclusion, fibromyalgia and cerebral palsy are hideous monsters.

I am the pain, the pain is me. And such.

Oh, bad day, bad, bad day. No. Not really. Bad flare, really. Bad timing. I am profoundly grateful that Adam came home this morning to help me. I am forcing myself to stay awake and alert just because I do not know what will happen if I were to lie down and close my eyes. I did lie down, for a few minutes, and Luna was so concerned that she stopped in the middle of her meal, jumped onto the bed, nuzzled me, and settled in by my side, purring as loudly as she could, nudging me and making small chirping noises. When your cat gets upset upon seeing you, you know you are not doing so well.

From Facebook:
Oh, today has been vicious. I desperately want an excuse for extreme fatigue and pain beyond all reason, rhyme, rationality, reality, or rights. The only reason I am upright is because of pills like carisoprodol and codeine, alongside yerba mate and force of will. I had to crawl up the stairs. Do you know what that's like? To be so fucking drained that you can't manage twelve steps without collapsing? For no real reason beyond your body falling apart? If you do, I tip my hat and blow a kiss to you, and if you don't you are very lucky.
So, how are you today anyway?

It has gotten to the point where my sensory perception is too skewed for me to be of much use to anyone. My proprioception and exteroception are intensely impaired and because of this I have put myself on a seizure watch. I have very little equilibrioception right now. I don't know how long I've been typing for. I am leaning against a pillow and I can feel my body swaying. I don't want to sleep just yet.

I will feel better later. I always do. But later always seems far away and my thinking is full of fog.

In conclusion, fibromyalgia and cerebral palsy are hideous monsters.

I am the pain, the pain is me. And such.

Oh, bad day, bad, bad day. No. Not really. Bad flare, really. Bad timing. I am profoundly grateful that Adam came home this morning to help me. I am forcing myself to stay awake and alert just because I do not know what will happen if I were to lie down and close my eyes. I did lie down, for a few minutes, and Luna was so concerned that she stopped in the middle of her meal, jumped onto the bed, nuzzled me, and settled in by my side, purring as loudly as she could, nudging me and making small chirping noises. When your cat gets upset upon seeing you, you know you are not doing so well.

From Facebook:
Oh, today has been vicious. I desperately want an excuse for extreme fatigue and pain beyond all reason, rhyme, rationality, reality, or rights. The only reason I am upright is because of pills like carisoprodol and codeine, alongside yerba mate and force of will. I had to crawl up the stairs. Do you know what that's like? To be so fucking drained that you can't manage twelve steps without collapsing? For no real reason beyond your body falling apart? If you do, I tip my hat and blow a kiss to you, and if you don't you are very lucky.
So, how are you today anyway?

It has gotten to the point where my sensory perception is too skewed for me to be of much use to anyone. My proprioception and exteroception are intensely impaired and because of this I have put myself on a seizure watch. I have very little equilibrioception right now. I don't know how long I've been typing for. I am leaning against a pillow and I can feel my body swaying. I don't want to sleep just yet.

I will feel better later. I always do. But later always seems far away and my thinking is full of fog.

In conclusion, fibromyalgia and cerebral palsy are hideous monsters.