What is it like to ___ ?

http://www.associatedconditionsofcerebralpalsy.com/index.html
http://www.originsofcerebralpalsy.com/03-index-conditions.html
http://cerebralpalsy.org/about-cerebral-palsy/conditions/
http://www.disaboom.com/neurological-disorders-general/cerebral-palsy-adults-secondary-health-conditions
http://www.healthcommunities.com/cerebral-palsy/children/complications-of-cerebral-palsy.shtml

I've bookmarked these sites mainly because explaining all the nutty details is starting to get a little exhausting. Also, this sort of list only scratches the surface, even with a mild case like me.

It's becoming seriously Wharrgarbl and full of hand-flailing. It's just one of those "Yes, I have All The Things" deals but it's also more. Also, fibromyalgia can definitely develop as a secondary condition to cerebral palsy, and a Google search reassures me I am totally not alone. Various doctor specialists have expressed surprise that I even made it this far without severe complications. That never bothered me. I'm a fighter.
Every patient is very different and unique, and some CP'ers can have multiple pregnancies and such with little to no problems, and some CP'ers can do lots of very functional things while others cannot. But I can only speak for myself, so... hand-flail. I don't know. Things!

So, okay. Here's a thing. I'll leave myself open for questions. You can ask me anything, I don't care how weird or personal it gets.

Because I want to keep learning about myself while I try to teach others about Things What I Deal With. And also because stuff is not really getting better, and I hesitate to say it's getting worse, but it's not exactly stagnant. I mean, CP itself is not progressive as the damage has been done, but certain related syndromes and conditions absolutely are progressive, and many of them are beating me with sledgehammers and swords. Little things affect affect other little things and then there are big things ad then it just snowballs and then I feel like Sisyphus. But it can't be pain and awfulness all the time or I will go mad. So I'm turning it into a comedy routine in my head.

Go ahead. Ask me.

What is it like to ___ ?

http://www.associatedconditionsofcerebralpalsy.com/index.html
http://www.originsofcerebralpalsy.com/03-index-conditions.html
http://cerebralpalsy.org/about-cerebral-palsy/conditions/
http://www.disaboom.com/neurological-disorders-general/cerebral-palsy-adults-secondary-health-conditions
http://www.healthcommunities.com/cerebral-palsy/children/complications-of-cerebral-palsy.shtml

I've bookmarked these sites mainly because explaining all the nutty details is starting to get a little exhausting. Also, this sort of list only scratches the surface, even with a mild case like me.

It's becoming seriously Wharrgarbl and full of hand-flailing. It's just one of those "Yes, I have All The Things" deals but it's also more. Also, fibromyalgia can definitely develop as a secondary condition to cerebral palsy, and a Google search reassures me I am totally not alone. Various doctor specialists have expressed surprise that I even made it this far without severe complications. That never bothered me. I'm a fighter.
Every patient is very different and unique, and some CP'ers can have multiple pregnancies and such with little to no problems, and some CP'ers can do lots of very functional things while others cannot. But I can only speak for myself, so... hand-flail. I don't know. Things!

So, okay. Here's a thing. I'll leave myself open for questions. You can ask me anything, I don't care how weird or personal it gets.

Because I want to keep learning about myself while I try to teach others about Things What I Deal With. And also because stuff is not really getting better, and I hesitate to say it's getting worse, but it's not exactly stagnant. I mean, CP itself is not progressive as the damage has been done, but certain related syndromes and conditions absolutely are progressive, and many of them are beating me with sledgehammers and swords. Little things affect affect other little things and then there are big things ad then it just snowballs and then I feel like Sisyphus. But it can't be pain and awfulness all the time or I will go mad. So I'm turning it into a comedy routine in my head.

Go ahead. Ask me.

What is it like to ___ ?

http://www.associatedconditionsofcerebralpalsy.com/index.html
http://www.originsofcerebralpalsy.com/03-index-conditions.html
http://cerebralpalsy.org/about-cerebral-palsy/conditions/
http://www.disaboom.com/neurological-disorders-general/cerebral-palsy-adults-secondary-health-conditions
http://www.healthcommunities.com/cerebral-palsy/children/complications-of-cerebral-palsy.shtml

I've bookmarked these sites mainly because explaining all the nutty details is starting to get a little exhausting. Also, this sort of list only scratches the surface, even with a mild case like me.

It's becoming seriously Wharrgarbl and full of hand-flailing. It's just one of those "Yes, I have All The Things" deals but it's also more. Also, fibromyalgia can definitely develop as a secondary condition to cerebral palsy, and a Google search reassures me I am totally not alone. Various doctor specialists have expressed surprise that I even made it this far without severe complications. That never bothered me. I'm a fighter.
Every patient is very different and unique, and some CP'ers can have multiple pregnancies and such with little to no problems, and some CP'ers can do lots of very functional things while others cannot. But I can only speak for myself, so... hand-flail. I don't know. Things!

So, okay. Here's a thing. I'll leave myself open for questions. You can ask me anything, I don't care how weird or personal it gets.

Because I want to keep learning about myself while I try to teach others about Things What I Deal With. And also because stuff is not really getting better, and I hesitate to say it's getting worse, but it's not exactly stagnant. I mean, CP itself is not progressive as the damage has been done, but certain related syndromes and conditions absolutely are progressive, and many of them are beating me with sledgehammers and swords. Little things affect affect other little things and then there are big things ad then it just snowballs and then I feel like Sisyphus. But it can't be pain and awfulness all the time or I will go mad. So I'm turning it into a comedy routine in my head.

Go ahead. Ask me.

What is it like to ___ ?

http://www.associatedconditionsofcerebralpalsy.com/index.html
http://www.originsofcerebralpalsy.com/03-index-conditions.html
http://cerebralpalsy.org/about-cerebral-palsy/conditions/
http://www.disaboom.com/neurological-disorders-general/cerebral-palsy-adults-secondary-health-conditions
http://www.healthcommunities.com/cerebral-palsy/children/complications-of-cerebral-palsy.shtml

I've bookmarked these sites mainly because explaining all the nutty details is starting to get a little exhausting. Also, this sort of list only scratches the surface, even with a mild case like me.

It's becoming seriously Wharrgarbl and full of hand-flailing. It's just one of those "Yes, I have All The Things" deals but it's also more. Also, fibromyalgia can definitely develop as a secondary condition to cerebral palsy, and a Google search reassures me I am totally not alone. Various doctor specialists have expressed surprise that I even made it this far without severe complications. That never bothered me. I'm a fighter.
Every patient is very different and unique, and some CP'ers can have multiple pregnancies and such with little to no problems, and some CP'ers can do lots of very functional things while others cannot. But I can only speak for myself, so... hand-flail. I don't know. Things!

So, okay. Here's a thing. I'll leave myself open for questions. You can ask me anything, I don't care how weird or personal it gets.

Because I want to keep learning about myself while I try to teach others about Things What I Deal With. And also because stuff is not really getting better, and I hesitate to say it's getting worse, but it's not exactly stagnant. I mean, CP itself is not progressive as the damage has been done, but certain related syndromes and conditions absolutely are progressive, and many of them are beating me with sledgehammers and swords. Little things affect affect other little things and then there are big things ad then it just snowballs and then I feel like Sisyphus. But it can't be pain and awfulness all the time or I will go mad. So I'm turning it into a comedy routine in my head.

Go ahead. Ask me.