Apr. 11th, 2013

brightrosefox: (Default)
My response to someone in a forum:

"I'm truly not sure how to guide somebody into disability advocacy. I literally just fell into it after venturing into forum after forum with varying and conflicting views. I wanted to let my voice be heard. I use Facebook for that. I am learning what to talk about and what to keep private. Really, all I do is... talk. I just talk. I talk about my symptoms. How my illnesses and injuries affect me. How I work alongside my disabilities. How I distract myself and focus on other things beyond the pain until I get struck with the Sledgehammer of Pain Attention (there's a pun in there somewhere). I am always fascinated and intrigued when people come to me asking for advice - or if not advice, at least how I keep going. So if you want to be a disability advocate yourself, my first suggestion is to just start talking. Blogs. Facebook. Twitter. I dunno. (I don't use Twitter.) But you get the idea. Someone will start listening to you. It's pretty awesome when a bunch of people start coming to you with their own stories and questions. I really have no idea what I'm doing; I just go by my instincts."

Also:

Oh wow, you guys, I actually applied a screen protector all by myself. I even got most of the air bubbles out; the ones that remain are too tiny for me to care, but if someone else wants to help smooth them out, that's cool. I'm kind of proud of myself. My motor coordination has improved slightly since today's Reiki acupressure massage anyway. Since the protector has a matte feel, I enjoy using it more than the bare screen. Turns out that my SPD, OCD, and hypersensitivity really do prefer a protector for my phones regardless of necessity.
http://www.ebay.com/itm/150944057835

Also:

Fantastic, wonderful day of walking. Montgomery Mall. I wound up treating myself to two of the best bras I have ever tried - ever. The store Soma was having a half-off sale. It was very worth it. Charlotte bought a lovely outfit, I found Java Mocha Monster, I got an incredible twenty minute massage by a certified acupressure Reiki expert, I bought a lipstick at Sephora for many dollars off, and we walked. We walked so much. Wonderful walking. At the end, hideously painful and screaming. However, I have learned how to distract, focus on everything else, and pay no attention, and so everything was awesome. Now the pain is smacking me in the face with a hammer so I have to deal with it. But oh, it was worth it. Montgomery Mall is pricey, but beautiful to walk through. Also, I absorbed the Reiki energy from my masseuse and let it flow all over me. My body and muscles feel so calm and loose. I feel quite "Hey guys, chill out, it's all good, just relax" right now. Unfortunately I needed clonazepam to avoid one anxiety attack that struck too suddenly, but life happens a lot. That's just life
This is the style of bra I got, half off.
http://www.soma.com/store/browse/product.jsp?maxRec=14&pageId=1&viewAll&productId=1570010565&prd=Ravishing+Push+Up
brightrosefox: (Default)
My body wants to desperately apologize for falling apart piece by piece. "Had a hard day, need to fall over." I made it so far, you know? It was so good. It doesn't matter. It's only ten in the evening. I made it far enough. I can fall over. Good job, body. I am proud. I did everything I could. Even when I had to lean on my friend during our mall walking. I did everything right. It was completely worth it. Tomorrow may be different. Tomorrow may be filled with sobbing and gasping and drugs and gentle exercises and supplements and stretching and drugs and meditation. But I will take the little victories, these little moments. *lifts head for headscratching* It is good. I am good.

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