On Cerebral Palsy and Ageing
Jan. 20th, 2014 02:41 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
brightrosefoxhttp://www.lifeexpectancy.com/cp.shtml
http://www.scope.org.uk/help-and-information/cerebral-palsy/ageing-and-cerebral-palsy
http://onlinelibrary.wiley.com/doi/10.1111/dmcn.2009.51.issue-s4/issuetoc
"The 2004 study by Strauss et al.9 appears to be the only published article that addresses life expectancy for older persons (age 60+) with cerebral palsy. As is usually the case, persons who are still fully ambulatory have life expectancies that are not dramatically shorter than normal, while those with more severe motor dysfunction have shorter ones."
"Adults with CP experience musculoskeletal problems and loss of function that non-disabled adults do not experience until much later (IOM). A study indicated that 75% of individuals with CP stopped walking by age 25 due to fatigue and walking inefficiency (Murphy). Another study on young adults with CP found clinical evidence of arthritis in 27 % of subjects vs. 4% in the general population (Cathels). These challenges result in chronic immobility, harming bone health. Elevated fracture rates in adults with CP are not well documented, however, documentation in children with CP (Munns), men surviving spinal cord injury (Bauman, 2001A) and stroke survivors (Sahin, Sato) does exist. Immobilization not only elevates fracture risk but also the risk for metabolic syndrome (Zderic)."
'Scuse me, I'mma start researching as much research as I can research about growing older with spastic cerebral palsy.
(Also, I recall when, several years ago, my chiropractor was "very impressed" that I was "doing so well and not yet debilitated" in my late twenties. That should have set off something in my thinky thoughts. Especially since I slid downhill after thirty without knowing a damn thing about why. And people vehemently deny that growing worse after thirty happens. HAH. And hey, I'm a fucking MILD CASE. Seriously, WHAT.)
Also: Dear gods, I've had people essentially accuse me of "lying" or "using negative thinking to make it worse." It is to laugh. No, really. Fuck that. Because this:
"Whilst there is not a wealth of published scientific evidence on the physical effects of ageing and cerebral palsy, surveys have highlighted some of the problems that people encounter. What is clear is that people with cerebral palsy age in the same way as non-disabled people (primary ageing) but some people with cerebral palsy may also experience secondary ageing effects. These are likely to be the long-term effects of the original impairment.
Below are some of the more common problems reported by people in their thirties and forties or, sometimes, a little earlier.
Increased levels of pain and discomfort
Osteoarthritis (pain and stiffness in the joints)
Increase in spasms
Increase in contractures (shortening of muscles)
Less efficient motor control (body parts involved in movement)
Joint problems
Tight muscles
Gastro-intestinal (digestive system) problems
New or increased back pain
Emergence of or increase in incontinence
Loss of joint flexibility
Reduced energy levels and fatigue"
"Many people with cerebral palsy push themselves to their physical limit and thus have little in reserve. Consequently, recovery can take much longer following an injury or illness and, unless there is a rehabilitation programme following the injury or illness, recovery to previous levels of functioning may be slow."
I know that most people have no idea where their fibromyalgia came from I know where mine came from.
So, you know. WAARGGHHARBL and all. I've mentioned I keep looking for NIH studies so I can be a guinea pig, right? I mean, NIH is, like, a 20 minute Metro ride away.
http://www.scope.org.uk/help-and-information/cerebral-palsy/ageing-and-cerebral-palsy
http://onlinelibrary.wiley.com/doi/10.1111/dmcn.2009.51.issue-s4/issuetoc
"The 2004 study by Strauss et al.9 appears to be the only published article that addresses life expectancy for older persons (age 60+) with cerebral palsy. As is usually the case, persons who are still fully ambulatory have life expectancies that are not dramatically shorter than normal, while those with more severe motor dysfunction have shorter ones."
"Adults with CP experience musculoskeletal problems and loss of function that non-disabled adults do not experience until much later (IOM). A study indicated that 75% of individuals with CP stopped walking by age 25 due to fatigue and walking inefficiency (Murphy). Another study on young adults with CP found clinical evidence of arthritis in 27 % of subjects vs. 4% in the general population (Cathels). These challenges result in chronic immobility, harming bone health. Elevated fracture rates in adults with CP are not well documented, however, documentation in children with CP (Munns), men surviving spinal cord injury (Bauman, 2001A) and stroke survivors (Sahin, Sato) does exist. Immobilization not only elevates fracture risk but also the risk for metabolic syndrome (Zderic)."
'Scuse me, I'mma start researching as much research as I can research about growing older with spastic cerebral palsy.
(Also, I recall when, several years ago, my chiropractor was "very impressed" that I was "doing so well and not yet debilitated" in my late twenties. That should have set off something in my thinky thoughts. Especially since I slid downhill after thirty without knowing a damn thing about why. And people vehemently deny that growing worse after thirty happens. HAH. And hey, I'm a fucking MILD CASE. Seriously, WHAT.)
Also: Dear gods, I've had people essentially accuse me of "lying" or "using negative thinking to make it worse." It is to laugh. No, really. Fuck that. Because this:
"Whilst there is not a wealth of published scientific evidence on the physical effects of ageing and cerebral palsy, surveys have highlighted some of the problems that people encounter. What is clear is that people with cerebral palsy age in the same way as non-disabled people (primary ageing) but some people with cerebral palsy may also experience secondary ageing effects. These are likely to be the long-term effects of the original impairment.
Below are some of the more common problems reported by people in their thirties and forties or, sometimes, a little earlier.
Increased levels of pain and discomfort
Osteoarthritis (pain and stiffness in the joints)
Increase in spasms
Increase in contractures (shortening of muscles)
Less efficient motor control (body parts involved in movement)
Joint problems
Tight muscles
Gastro-intestinal (digestive system) problems
New or increased back pain
Emergence of or increase in incontinence
Loss of joint flexibility
Reduced energy levels and fatigue"
"Many people with cerebral palsy push themselves to their physical limit and thus have little in reserve. Consequently, recovery can take much longer following an injury or illness and, unless there is a rehabilitation programme following the injury or illness, recovery to previous levels of functioning may be slow."
I know that most people have no idea where their fibromyalgia came from I know where mine came from.
So, you know. WAARGGHHARBL and all. I've mentioned I keep looking for NIH studies so I can be a guinea pig, right? I mean, NIH is, like, a 20 minute Metro ride away.
