First off, I will say that it is an absolute thrill to have had my Beca here since Saturday. We don't see each other enough, and now we have spent several days together. Yay!
Last night, I came home to a house of happy people who were preparing to go to O'Leary's Irish Pub for dinner. O'Leary's food is magnficent. But it had been a while since I had been there. We all sat there poring over the menus. I chose the Dublin Steak Sandwich. It is the best steak sandwich I have ever eaten, hands down. I am now spoiled for all other steak sandwiches, damn it. I think it was the combination of the mushrooms, the blue cheese mayo, the onions, and the tenderness of the flank steak -- I wonder if they soaked it in Guiness first or something. And it was on a toasted hoagie. My gods it was heaven. We all ate till we couldn't move. At the meal's end I had food still working down my throat. And then Beth and I ordered a slice of chocolate cake to share, because we are insane. With rum soaked into the icing. The cake, I mean. And whipped cream drizzled and sprinkled with chocolate.
What is amazing is that I woke up this morning hungry. Where does it all go? I don't understand. The human digestive system is miraculous, I tell you. Mounds of food, and hungry again a few hours later.
In other news: I got an email last night from someone who had been reading my LJ and had some questions about epilepsy. I was happy to answer. The questions made me think back and realize that I was so intent and convinced that I did not want nor have the actual disease that I ignored, denied, and protested every episode. It couldn't be epilepsy, it's something else. Maybe the seizures aren't real. Maybe I'm just really screwed up. It was an honest and weird relief to finally be told what was happening. Although thanks to an incompetant neurologist from years ago, it wasn't diagnosed soon enough. Sigh.
But then the person asked about my medication: Once I had enough of it in my system, I could just go back to being normal, right? I would never have to worry about any more seizures, right? It would just go away?
Here I paused, and squeezed my eyes shut before deciding what to reply with. I wasn't sure if the person was ignorant or stupid. I am hard-pressed to think of anyone with a serious medical condition who can just "go back to normal" after taking enough medication. I got past anorexia and I still feel twinges of it every now and then; I will never escape completely. Cerebral palsy has no actual medication, just methods of working with it. My friends who have neurological problems like bipolar and DID and MS will never "just get back to normal" just because of the medication.
I wasn't sure what to say. So, basically, I replied with a version of the above paragraph. I am waiting for the person's response.
I think people need more education.
Last night, I came home to a house of happy people who were preparing to go to O'Leary's Irish Pub for dinner. O'Leary's food is magnficent. But it had been a while since I had been there. We all sat there poring over the menus. I chose the Dublin Steak Sandwich. It is the best steak sandwich I have ever eaten, hands down. I am now spoiled for all other steak sandwiches, damn it. I think it was the combination of the mushrooms, the blue cheese mayo, the onions, and the tenderness of the flank steak -- I wonder if they soaked it in Guiness first or something. And it was on a toasted hoagie. My gods it was heaven. We all ate till we couldn't move. At the meal's end I had food still working down my throat. And then Beth and I ordered a slice of chocolate cake to share, because we are insane. With rum soaked into the icing. The cake, I mean. And whipped cream drizzled and sprinkled with chocolate.
What is amazing is that I woke up this morning hungry. Where does it all go? I don't understand. The human digestive system is miraculous, I tell you. Mounds of food, and hungry again a few hours later.
In other news: I got an email last night from someone who had been reading my LJ and had some questions about epilepsy. I was happy to answer. The questions made me think back and realize that I was so intent and convinced that I did not want nor have the actual disease that I ignored, denied, and protested every episode. It couldn't be epilepsy, it's something else. Maybe the seizures aren't real. Maybe I'm just really screwed up. It was an honest and weird relief to finally be told what was happening. Although thanks to an incompetant neurologist from years ago, it wasn't diagnosed soon enough. Sigh.
But then the person asked about my medication: Once I had enough of it in my system, I could just go back to being normal, right? I would never have to worry about any more seizures, right? It would just go away?
Here I paused, and squeezed my eyes shut before deciding what to reply with. I wasn't sure if the person was ignorant or stupid. I am hard-pressed to think of anyone with a serious medical condition who can just "go back to normal" after taking enough medication. I got past anorexia and I still feel twinges of it every now and then; I will never escape completely. Cerebral palsy has no actual medication, just methods of working with it. My friends who have neurological problems like bipolar and DID and MS will never "just get back to normal" just because of the medication.
I wasn't sure what to say. So, basically, I replied with a version of the above paragraph. I am waiting for the person's response.
I think people need more education.