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GR ARG SNARL SNAP.
Right now, it's not the chronic widespread pain in various debilitating forms, or the crippling fatigue that hits at unusual times, or the creepy way my knees and wrists feel twisted and stabbed if I move them certain ways. No, it's the fact that none of it will ever go away no matter what I do, or what doctors who, or what specialists do, or what holistic doctors do. It's all forever. I can take all the drugs, supplements, plant extracts, fruit extracts, specialized diets, therapy treatments, biofeedback sessions, and personal meditation everyone has ever conceived. People can tell me forever that "Just do XYZ and you will be cured. Or healed. Or get better for a few years, maybe?" Because no. Go find me an actual, full, honest, complete cure for cerebral palsy and every single syndrome that comes with it, then go find me an actual, full, honest, complete cure for irreversible brain damage and white matter death from birth... and then we can discuss your magical healing cure treatments. Then I will accept things. Then I will stop feeling cynical and annoyed because "Well, that Olympic athlete has your illness and she just won a gold medal!" and wow that makes me feel better instantly. Yay, other people who are not me are doing things they enjoy! Funny thing is that I am doing things I enjoy that are not athletic activities. Sooo... yeah, do stop telling me that Joanna's Own Chronic Disabilities, I'm Doin' It Wrong.
XOXO!
*is not cynical right now, but does want to reach through cyberspace and stab some people kindly, you know, for their own good*
Right now, it's not the chronic widespread pain in various debilitating forms, or the crippling fatigue that hits at unusual times, or the creepy way my knees and wrists feel twisted and stabbed if I move them certain ways. No, it's the fact that none of it will ever go away no matter what I do, or what doctors who, or what specialists do, or what holistic doctors do. It's all forever. I can take all the drugs, supplements, plant extracts, fruit extracts, specialized diets, therapy treatments, biofeedback sessions, and personal meditation everyone has ever conceived. People can tell me forever that "Just do XYZ and you will be cured. Or healed. Or get better for a few years, maybe?" Because no. Go find me an actual, full, honest, complete cure for cerebral palsy and every single syndrome that comes with it, then go find me an actual, full, honest, complete cure for irreversible brain damage and white matter death from birth... and then we can discuss your magical healing cure treatments. Then I will accept things. Then I will stop feeling cynical and annoyed because "Well, that Olympic athlete has your illness and she just won a gold medal!" and wow that makes me feel better instantly. Yay, other people who are not me are doing things they enjoy! Funny thing is that I am doing things I enjoy that are not athletic activities. Sooo... yeah, do stop telling me that Joanna's Own Chronic Disabilities, I'm Doin' It Wrong.
XOXO!
*is not cynical right now, but does want to reach through cyberspace and stab some people kindly, you know, for their own good*
