Nov. 2nd, 2012

brightrosefox: (Default)
Good idea: Taking a pleasant three mile walk (limp) (walk-limp?) along with a short bus ride, to get exercise and a workout.

Bad idea: Doing this with a pounding headache that eventually leads to vertigo, neck stiffness, sinus pain, Raynaud's flaring, fibromyalgia flaring, incredible spasticity, and hobbling while leaning heavily on a cheery rose cane.

So, perhaps yesterday's seizure with head collision, mild memory loss, and brain reset was slightly more interesting than I'd though. (My brain likes to reset a lot. My loved ones and I make jokes about this.)

Also? My life-long hypersensitivity caused by that three month premature birth and brain damage? That can fuck right off. I was so cold that by the time I got off the bus to my community, I was shivering and felt trapped in a freezer. That is just not fair.
I need to work on personal warming techniques, because nothing really helps if I get past a certain level of cold.
brightrosefox: (Default)

Dear gods of Saturnalia, and also my very good friends:
I've already asked for telekinesis, but something more physical and practical would be a pair of gloves and/or socks that offer tons of insulation without being so thick that my teeny tiny hands can't even pick stuff up, which is the problem with most insulated thermal gloves.
Oh, and also I want gift cards to Amazon and Sephora.


I finally feel hungry enough for dinner, which will probably be the leftover vegetable noodle stir-fry that was awesome. Post-ictal recovery can be funny and tricky in regards to appetite.

Also, I want to quote a message from a good friend, who will remain anonymous unless they wish to reply. This is rather fascinating and I hope my research comes up with stuff.

"i saw your post about brain questions.
i do not know details for you- however i can share that in my studies i have read on multiple occasions that epilepsy is a cyclic disorder and very closely related to other cyclic disorders like bipolar and schizophrenia, not that i intend to imply in any way that i think you suffer from the others. they all have been found to exhibit an error on the same same of the same chromosome in some studies, which casts light onto why drugs developed for epilepsy work on things like bipolar disorder.
also it seems like maybe the seizures you are having, maybe when they happen they are firing off a lot of things in your brain, and this is depleting your chemistry? i know that even minor seizures leave people feeling really scared exhausted and having a sudden onset of depressive symptoms. maybe the seizure activity is throwing the balance off? i do not know if that is a medically accurate assumption, it just seems to make sense to me.
i don't know if any of this is helpful to you. i can only hope it is."

My physical therapy with the fibromyalgia specialist, Dolores, has been so amazing. She has taught me ways to help my posture in ways I'd never considered. We get along extremely well, and I feel safe telling her everything, especially my mental healthy history. She writes down everything, she asks lots of questions, she makes me feel wonderful and chatty. Yay!

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