Meme... and me.

[brightrosefox]

Does anyone want to ask me random questions about anything based on my profile, userpics, interests, tags, past posts, or etcetera? I will answer anything, and if you want to be private, you can send me a message. I am feeling better and more open.

Comments

[starspiller.livejournal.com]

what things helps you feel better? sorry for my english)

[brightrosefox.livejournal.com]

It depends on the kind of pain I am in. For the most part, I am helped a lot by a combination of prescription medications, certain supplements, stretching, and light exercise.

Were you looking for more specific examples? I'm happy to talk about details.

[starspiller.livejournal.com]

do you have non-medication things that helps you, like warm bath or a lot of a fresh air?

[brightrosefox.livejournal.com]

Yes, indeed!

A lot of fresh air and sunshine can definitely help. Lots of stretching, like really basic yoga or Pilates or tai chi. Certan kinds of massage can help, but it has to be gentle. And I always breathe very deeply and intensely.

I don't usually take baths unless I have something or someone to help me lie down and stand up in the tub, since my joints are bad. But hot showers are wonderful. I concentrate the stream of water on my lower back and my legs mostly.

[starspiller.livejournal.com]

do you get physiotherapy techniques, such as electric muscle stimulation, massage and stretching to cope with cerebral palsy or you take only pills and light stretching?

does yours cerebral palsy get worse with every year?

[brightrosefox.livejournal.com]

I used to get physiotherapy, but I stopped due to financial issues. If I get approved for disability insurance, I will start again.

Yes, my cerebral palsy does get worse every year. Well, the syndromes, conditions, and symptoms associated with it get worse, since cerebral palsy is a static brain damage and is not progressive. But the damage done by it gets worse.

[starspiller.livejournal.com]

how do you defend yourself from the deformation of bones? Are you use orthoses or something like that?

[brightrosefox.livejournal.com]

I don't have any bone deformations right now. But to prevent them, I take supplements like calcium, magnesium, vitamin C, vitamin D, and hyaluronic acid.

[starspiller.livejournal.com]

oh, sorry, I thought that cerebral palsy is strongly deformed bones, the majority of people in my center for the disabled it happened, and I also now feel the pain of it :)
Do you have close to your house a rehabilitation center for free treatment of cerebral palsy, or do you have to pay for all medical treatment?

[brightrosefox.livejournal.com]

No, cerebral palsy has nothing to do with bones. It has to do with brain damage and muscles. It means that the connections between the brain and muscles is impaired.

[starspiller.livejournal.com]

yes you're right, but constant muscle spasticity puts my feet in an unnatural position, day after day, which leads to distortion of the ankle bones :)
it is very difficult to control the movements when you are nervous?

[brightrosefox.livejournal.com]

Yes, it is difficult on all parts of the body in many forms.

It can be difficult to control movements when I am nervous, yes.

[unico-love.livejournal.com]

Did you watch the original My Little Pony as a child? Which MLP:FiM pony do you most relate to (you remind me of a combination of Fluttershy and Twilight Sparkle, which is how I also see myself)?

Did losing your virginity hurt a lot? (For me it was very painful and I bled the first two times).

What is your favorite book? Or books, if you can't choose one.

At what age do you think you developed fibromyalgia? (I assume you were diagnosed after having had it for awhile).

[brightrosefox.livejournal.com]

I did! I remember watching all the movies, specifically.

You know, my two favorites are Fluttershy and Twilight Sparkle, and I am most definitely a combination of the two - sometimes with a little but of Rarity and Applejack thrown in. It's hard for me to relate to Rainbow Dash.

Hmm... well, it did hurt and it didn't. See, when we first tried, I would cry out in extreme pain, which would make Adam stop before he could thrust. So technically, our first time wasn't actually the "first time." In fact, after he went back to Maryland, I took one of my mother's vibrators into the bathroom and very carefully inserted it until I felt a sort of giving sensation, which was my hymen breaking. That did hurt, but it was easier because I was in control. When I pulled the vibrator out it was covered in blood. So... I guess I should say I lost my virginity to myself, if we want to be technical. Mom said it was probably better for me, anyway.
However! When I visited Adam a month later, we had sex on his bed and it didn't hurt at all, it just felt sore. And that part of losing my virginity felt great. Afterwards, I made Adam laugh because I kept saying how great it was, and how thirsty I was, and I kept asking so many questions. I orgasmed several times, as well.

Well, for a long time my number one favorite book was "Good Omens" by Neil Gaiman and Terry Pratchett, followed by "American Gods" by Neil Gaiman, "Hogfather" and "Soul Music" by Terry Pratchett, "The Never Ending Story" by Michael Ende, and "The Princess Bride" by William Goldman.
As of these days, I really love any book by Seanan McGuire and Catherynne M. Valente, both of whom I'm friends with on Livejournal, and I love almost every book by A. Lee Martinez, especially "Chasing The Moon" and "Divine Misfortune."

Well, I believe I developed fibromyalgia in childhood, probably between the ages of 10 and 14, but my family and I just assumed it was part of having cerebral palsy. I didn't start really thinking about it until 2006, after I was diagnosed with epilepsy, because the symptoms of fibromyalgia had become so intense. That was also around the time I began really recovering from anorexia. So by the time I was diagnosed in 2007, I'd been living with it my whole life.

Thanks for these questions! I enjoyed them.

[unico-love.livejournal.com]

Oh wow! I could never have broken my own hymen! I would be too nervous/squeamish/worrying if I was hurting myself. But I'm glad it went well for you:-)

And fibromyalgia at 10? That must be awful to deal with that almost all your life:-(

[brightrosefox.livejournal.com]

It was very hard to do, because I knew it would hurt. I had to remind myself to keep breathing. I think that if it had happened during sex, we wouldn't have been able to keep going because I would have probably cried a lot, and Adam wouldn't have wanted to hurt me.

Honestly, I was just so used to living with muscle tension and pain that I didn't notice most of the time! ;) The reason I say 10 years old was because I developed clinical depression and anxiety and I saw a psychiatrist for a year. I had been bullied at school a lot and I was always being pulled out of classes for physical therapy and advanced English classes. It was a rough time for such an introverted, shy child.

[unico-love.livejournal.com]

I imagine:-( I was bullied, too.

[chaosvizier.livejournal.com]

OOOOOHHH QUESTIONS NO ONE EXPECTS THE SPANISH INQUISITION!!!

Right, had to get that out of my system. Onward!

1) Aside from all things Pony-related, what is/was your favorite cartoon/animated series? (I like cartoons and animation; I'm always curious about what folks like and don't like, what they've seen that I haven't, and so on.)

2) You have "martial arts" listed in your interests. What is it about them that attracts your attention/interest? (I'm curious, again, since I teach karate, and like to hear people's views on the arts.)

3) If you and Adam are ever in NYC and feeling adventurous and not too shy, would you wish to meet a crazy new person? (I would do my utmost to use my hard-earned diplomatic skills to be nice.)

[brightrosefox.livejournal.com]

1) Futurama! Followed by The Simpsons, which isn't actually a favorite anymore, but I still love it. I grew up with it and it's still funny. I also recently watched the old She-Ra cartoon on Netflix. Man, nothing is as good as you remember. Also, I will be watching the latest TMNT cartoon incarnation, because I always do. I miss the 2003 version.

2) At first, I loved reading about and spectating all things martial arts because I adored Ninja Turtles and loved the whole concept of martial arts, of using your body as a weapon. I could never truly participate because of my fascinating handicap limitations - but I could do basic tai chi, as I found. Which is really a slow version of most martial arts (as I learned from family friend Curtis, who showed me how unbelievably fast you could go from gentle tai chi to motherfucking karate). I started taking tai chi classes when I was 16. The master was a guy in his 60s who looked 30, and his master was a guy in his 90s who looked 60. Unfortunately, too many of my moves strained my legs and hips, and because of a slip on an icy hill the winter before the classes, I had to quit after six months of classes, because I rapidly developed the most severe case of sciatica my doctors had ever seen in a teenager. Even the master, when he laid hands on me, started shaking and twitching, and he told me that he could only do so much; he was actually crying, and he hugged me. I was really upset, because I loved tai chi.
So, after about a year of agonizing pain that got assaulted by physical therapy, narcotics, sleeping pills, and lots of crying, my mother took me to a local acupuncturist, who literally "cured" me in four sessions (he bartered with my mother for her paintings because his wife was an art collector). I had no more pain. So that right there made me completely believe in the body being this amazing fantastic beautiful energy vessel.
Many many many years later, my interest in qigong was peaked once again, and as of last year, I've been performing very gentle qigong exercises - which do include tai chi moves, yay - and I've been feeling quite energetic in the sense that my qi is moving instead of being blocked. The cranio-sacral therapy I had last November also helped.

3) Yes. Good gods, YES. Adam is sent to NYC quite often as a computer tech who sets up trade shows, conventions, internet connections for world leaders, etc. (His company is based in Northern Virginia and he and I live in central Maryland, so it's a 4-hour drive). So the next time he is given a job in the city and is driving and has room for me, I will contact you. Granted, Adam may not have much advanced warning. With his company, it's usually something like, "Hi, oh, by the way, we need you to go to Texas tomorrow, don't worry, you'll be back in two days."
Also, we are both completely crazy, so we don't care if you greet us wearing a birthday hat and elephant slippers that make noise when you walk and something something platypus.

[chaosvizier.livejournal.com]

1. Cartoons really aren't as good as you remember. Dammit, Voltron, why do you suck so much 20 years later? No wait, 25 years later. Crap, I'm so old.

2. Tai Chi is awesome, if only because it looks slow and peaceful and is really just asskicking in slow peaceful disguise. And I always contended that acupuncture is just a specialized martial art: you're stabbing critical points with tiny swords, FOR GOODNESS AND GREAT JUSTICE, whereas if you strike those same points, you will cause GREAT PAIN AND SUFFERING.

3. I like meeting new crazy people. Jolly good, wot wot! We shall see what happens when it happens. I look forward to it!

[brightrosefox.livejournal.com]

Tiny swords versus body parts. Guess which one is deadlier!! :-D

[morlith.livejournal.com]

What are three things you dream about doing?

What is your favorite season?

Who are three people that you have a crush on?

What are three of your favorite foods?

What is your pony mark?

[brightrosefox.livejournal.com]

Excellent questions!

1. Becoming proficient in qigong practices including tai chi and touch healing. Becoming a full time published novelist with several books and stories. Creating my own line of organic skin care products.

2. Spring - specifically late spring to early summer.

3. If we're talking celebrities, then Brad Pitt, Angelina Jolie, and India Eisley.

4. Pizza, chocolate, asparagus.

5. A five-point star with a lotus blossom in the center, surrounded by an ouroboros. No, really. I'm complex and weird.

[glittergirl4519.livejournal.com]

how do you keep your skin looking so young and pretty

[brightrosefox.livejournal.com]

Thank you for the compliment! It is hard work.

I use several organic products that I usually buy online. I will list them all there. No matter what they are, I use them on my face, body, and hair.

http://www.skinactives.com/EMUlator-Oil.html
https://store.abbeystclare.com/skin-care/rice-olives-deep-cleansing-serum-and-skin-care-serum-amazing-skin-treatment-melts-away-eye-makeup.html
http://theskinrevolution.com/_revitalize.html
http://theskinrevolution.com/_restore.html
http://www.secondnatureskin.com/products/womens-skin-care/coco-mojo-facial-lotion/
http://justnaturalskincare.com/9/creams/-face-lotions.html
http://andalou.com/index.php/body-care/body-butters/kukui-cocoa-body-butter.html
http://andalou.com/index.php/haircare/shampoo/moisture-rich-sweet-orange-argan-shampoo.html
http://andalou.com/index.php/haircare/healthy-shine/sunflower-citrus-shine-shampoo.html
http://justnaturalskincare.com/Psoriasis/hair-shampoo-psoriasis.html