brightrosefox: (Default)
Why is it that, in most dreams where I am in physical danger, I am unable to scream or move quickly?
My last dream involved a bad fall and crash at the top of the stairs, while a large group of people were downstairs having a small quiet party. Something supernatural was with me, something insidious. I grabbed the stair ledge and pulled myself up to a kneeling position. I yelled my husband's name, but it was only a whisper. I couldn't call for help, not with the shadowy creature surrounding me. I was moving so slowly. It felt as though nobody was in the house but me, me and the cats.
And abruptly, I realized that nobody was in the house. Adam was at work. There was no party. The cats were all downstairs. It was only me and the shadow entity. I struggled to call on my internal resources, my spirit guardians, but even my psychic voice was muffled. I was not afraid. I was determined. I was badly injured, and I only had myself, and my powers to create weapons and defenses were drained. I stopped trying to stand. I knelt there and mouthed words, calling on the water in the bathroom, the air circulating around the house, the earth under the house, the fire downstairs used to light the gas stove. I pulled in all into me, and with a desperate burst, I unleashed it. The shadow creature shrieked and vanished.
Without any warning at all, the house filled with presence again. There was that quiet downstairs party. I whispered my husband's name again, struggling to turn it into a cry. Someone must have heard. Adam came up the stairs and found me, sagging against the door of the bathroom, my nose bleeding. He spoke to me. He half-carried me to the bedroom and helped me lie down. He brought damp towels and tissues and water with electrolytes. I managed, somehow, to tell him that a negative spirit had entered the house and stole my strength, and I pulled all the elemental power I could to drive it away. He was very proud but also puzzled, since the house was supposed to be powerfully shielded and guarded. I was crying but I didn't mean to cry. It was just a reaction without intention. He stroked my hair and curled up with me, and me took my hand and fed me energy and power and strength, and he said, "Go to sleep, my darling. I'll be monitoring you through our psychic bond and everything will be okay. I will strengthen the wards." He needed to check on our friends. He would back be up soon.
The dream ended there.

It has been something of a recurring thing: My slowness in dreams. My exquisite agony in dreams. My whispering words in dreams. Sometimes I can barely walk for the pain in my hips and knees. Sometimes I can only speak with thoughts instead of physical words. Sometimes my body is wrapped in a floating translucent shell and it is the only way I can move. In my dreams, the pain is so much worse than in reality. But I have access to weapons of all kind and I feel safe, even if something horrible grabs me.

When I was a child, I had flying dreams every night. Even astral projection. Like my father and cousins in their younger years. And if a harmful person appeared, I just waved my right hand fiercely, shouting "Shoo! Shoo!" to make then disappear.

When I was a child, I dreamed of dragons, of ancient tortoises, of unicorns mixed with white tigers, of phoenix birds with feathers of every color. Dragons have never been dangerous to me. Even if some were, there were always other dragons who were benevolent.

It is why I always bristle when I read an article comparing chronic pain to dragons. The only way I can see such battles happening is dragon against dragon. And I am a human amalgam of dragon, phoenix, tortoise, unicorn, white tiger, and fae, wrapped in the skin of a moonlight witch.

Then, why do my dreams cripple me? The only reason I can think of is to teach me to use the insides, the powers coming from my spirit and not my body. My body is very important and vital to me. But perhaps not so much in my dreams.

And I think this piece of art, beyond anything, is one of the greatest ways I can understand myself. Every time I look at it, I weep. I even have that same cane. I know Shinga and I barely know each other, but she knows chronic pain. She knows what being a warrior means. She was in the US Army and was badly injured and treated so poorly during therapy that she has severe PTSD. She is disabled badly. She knows battles. And I want to hold her and hold her and tell her what this means to me.

http://shinga.deviantart.com/art/Awaken-Warrior-and-Rise-378439320
awaken__warrior__and_rise_by_shinga-d69b9nc
(Note: Please please refer to Shinga before borrowing or using this image. Please use the Deviant Art link. This is her work. Copyright Shinga. The only reason I displayed the actual image was in case someone can't click on the link.)
brightrosefox: (Default)
It starts with Saturday, Imbolc 2013.
See, on Facebook, I ran into the girlfriend of a guy I had been friends with for years but had never honestly had one on one time with. Which is the story of my life, actually: Having all these friends and these acquaintances, and having memories of only parties, large gatherings, where if I wanted to talk with someone alone I had to almost push my way through and schedule a place.
Ben had always been The Dude. He abides. He has always abided. He is friends with so many people. It is understandable. His girlfriend, Jess... I didn't know her. We seemed to have many things in common. After months and months, I finally reached out to message her. And we began talking. And something started happening.
I said, "We really really need to get together. Just us. No parties, no house gatherings. Adam may or may not be home. But no matter what, I want you meet you, in my house." And she agreed, and we made arrangements for Imbolc weekend. Adam was indeed going to be home, so he and I set up for brunch and awaited the arrival of Ben and Jess.
They arrived, and I hugged Jess like an old, lost friend, and looking at her there was this instant knowing, this instant understanding and energy of "Yes, I know you. It has been so many lifetimes. I missed you." I hugged Ben the same way, but with a little less intensity, as I already knew him.
After a magnificent brunch, I gave Jess a tour of the upstairs and showed her my gemstones, and we talked about our spiritualities, our energies... how I am a beacon and she is a generator. And yes, the energy that came from her made my head buzz pleasantly. I realized that several items I'd been keeping hidden had been meant for her, and she was extremely grateful. I had randomly thrown wood brushes, lip balms, skin creams, gemstones, and makeup into a black canvas shoulder bag; I gave her all of it. It turned out that it was all exactly what she needed, even the bag. It had all been intuition and connection. I had known her already. And we talked about knowing people, about how she and Ben had known immediately that they were for each other. We talked about energy, about metaphysics and quantum physics. We talked about getting together again, since they live very close to our neighborhood.
When they left, and the energy was still rushing around the house and my head, I sat and considered. I believe I tend to be a little forceful and intense when establishing a friendship with a person I deeply like. I wanted badly to grab Jess' hands and tell her how deeply I knew her, how intensely we connected. But she knew. It was in her face. She always made eye contact when we talked and she always smiled at me. She glowed.
Later, I messaged her, asking if I did okay, if I wasn't too extreme, if I didn't put my feet in my mouth too much. No, she said, she and Ben had genuinely and honestly had fun and wanted to see me again. And that relaxed me more than I could have realized.

Making friends is so, so, so difficult, because I need to communicate on specific levels before I can actually approach them. Fascinatingly enough, Facebook and Livejournal are among the best things that have happened to me regarding this kind of communication. I need to type out words, ritualistically, deliberately, allowed to pause and stumble and correct. I need to assure myself that there can be a connection when we meet. My family cannot understand, and I know why, and I get that. But I am unable to simply walk up to someone and start a comfortable conversation without feeling an absolute terror of possible rejection so deep that I can hardly speak.

I love fiercely, I love deeply, I love powerfully, I love in ways that seem insistent. I need friends who can do that with me. And yet I will always, always wonder if I am making mistakes, if I am coming off as "too crazy, too weird, too dumb, too whiny, too clingy, too repulsive." I have learned that in the past, people have questioned my relationship with my husband, wondering how he could "put up" with me, if I was truly the right partner for him, if he could even handle me on a constant, consistent basis. I have taught myself to let those comments go, because nobody has any say about my relationship but my partner and myself. However, it really is fascinating and very interesting that people who should know me would assume that I am not good enough to be loved by someone who has so many different ways of living than I do.

Loving me is a hard thing, a wild thing, a weird thing, a deliberate thing, a test of strength and resolve. I am intense and extreme and stubborn and wistful and insane and I am too much inside my own head and quite often not fully aware of my environment. To love me is to live a journey through many worlds. I just want friends who can do that for me. I don't even care if they would badmouth me. These days I have stopped caring about many things.

The heart-breaking problem with online friendships is that meeting in person is usually improbable, or highly difficult. But if I were able, if I had all the money and opportunity, I would find a way too meet all the friends I have made online who I knew could love me the way I needed.

Right now, all I know is that I must see Jess, and Ben, soon. Maybe it will help bring me out of this quantum shell I have constructed around my heart.
brightrosefox: (Default)
In the epileptics commuity, a young woman was talking about her seizure experiences. She wanted to know if some of her seizures were temporal lobe seizures, and not just myoclonic like her doctors insisted. I commented and explained what my own seizures were like. She told me that she has had the exact same kind of seizures, but her neurologist has only diagnosed her with myoclonic. She would tell her neurologist about episodes in which she would freeze and become trapped in her body but still be able to hear and see and be aware of her surroundings -- pretty much like this type that I often experience. And you know what her neurologist told her? That it was not a seizure, it couldn't be a seizure, because "she was able to hear what was going on around her."
Because she was still relatively conscious and aware.
Gods forbid.
And at that point, in the back of my brain, I quietly lost it.
I am sick, sick, sick and tired of doctors and neurologists insisting on exactly how an epileptic seizure must be. Yes, there are some specific symptoms and indications, so they can rule out other disorders. But to say that "this is not a seizure because you were conscious" is so much fucking bullshit. I told the person that she either needed to educate her doctor or find a new one. Obviously this doctor doesn't have a clue. It is dangerous for her. She doesn't often remember what happens. And you say she's not having seizures? Where the bloody fuck do you come off? How dare you? Are you saying that every single epileptic who remains awake and aware during a complex partial seizure is not having a seizure? What about those of us who remember? How about the few who even stay aware during, and remember having, a fucking tonic clonic seizure for gods' sake??
Sorry, assholes, but some of us just don't conform to your narrow way of thinking. You are doctors. You learn stuff every day that you didn't know about before. Shit happens that hasn't been taught in your medical classes and textbooks. If someone comes to you experiencing symptoms of severe bipolar disorder, but they aren't typical and exact according to your precious textbooks, do you just diagnose them with mild depression and mood swings, throw some bottles of pills at them, and tell them to come back in three months? I bet you do. Do the research. Learn about your patients. And for heaven's sake, listen to them!
We know how we feel. You only know how we feel because we tell you.

Sorry. I had to get that out.
I'm done now.
I feel better.
brightrosefox: (Default)
In the epileptics commuity, a young woman was talking about her seizure experiences. She wanted to know if some of her seizures were temporal lobe seizures, and not just myoclonic like her doctors insisted. I commented and explained what my own seizures were like. She told me that she has had the exact same kind of seizures, but her neurologist has only diagnosed her with myoclonic. She would tell her neurologist about episodes in which she would freeze and become trapped in her body but still be able to hear and see and be aware of her surroundings -- pretty much like this type that I often experience. And you know what her neurologist told her? That it was not a seizure, it couldn't be a seizure, because "she was able to hear what was going on around her."
Because she was still relatively conscious and aware.
Gods forbid.
And at that point, in the back of my brain, I quietly lost it.
I am sick, sick, sick and tired of doctors and neurologists insisting on exactly how an epileptic seizure must be. Yes, there are some specific symptoms and indications, so they can rule out other disorders. But to say that "this is not a seizure because you were conscious" is so much fucking bullshit. I told the person that she either needed to educate her doctor or find a new one. Obviously this doctor doesn't have a clue. It is dangerous for her. She doesn't often remember what happens. And you say she's not having seizures? Where the bloody fuck do you come off? How dare you? Are you saying that every single epileptic who remains awake and aware during a complex partial seizure is not having a seizure? What about those of us who remember? How about the few who even stay aware during, and remember having, a fucking tonic clonic seizure for gods' sake??
Sorry, assholes, but some of us just don't conform to your narrow way of thinking. You are doctors. You learn stuff every day that you didn't know about before. Shit happens that hasn't been taught in your medical classes and textbooks. If someone comes to you experiencing symptoms of severe bipolar disorder, but they aren't typical and exact according to your precious textbooks, do you just diagnose them with mild depression and mood swings, throw some bottles of pills at them, and tell them to come back in three months? I bet you do. Do the research. Learn about your patients. And for heaven's sake, listen to them!
We know how we feel. You only know how we feel because we tell you.

Sorry. I had to get that out.
I'm done now.
I feel better.
brightrosefox: (Default)
In the epileptics commuity, a young woman was talking about her seizure experiences. She wanted to know if some of her seizures were temporal lobe seizures, and not just myoclonic like her doctors insisted. I commented and explained what my own seizures were like. She told me that she has had the exact same kind of seizures, but her neurologist has only diagnosed her with myoclonic. She would tell her neurologist about episodes in which she would freeze and become trapped in her body but still be able to hear and see and be aware of her surroundings -- pretty much like this type that I often experience. And you know what her neurologist told her? That it was not a seizure, it couldn't be a seizure, because "she was able to hear what was going on around her."
Because she was still relatively conscious and aware.
Gods forbid.
And at that point, in the back of my brain, I quietly lost it.
I am sick, sick, sick and tired of doctors and neurologists insisting on exactly how an epileptic seizure must be. Yes, there are some specific symptoms and indications, so they can rule out other disorders. But to say that "this is not a seizure because you were conscious" is so much fucking bullshit. I told the person that she either needed to educate her doctor or find a new one. Obviously this doctor doesn't have a clue. It is dangerous for her. She doesn't often remember what happens. And you say she's not having seizures? Where the bloody fuck do you come off? How dare you? Are you saying that every single epileptic who remains awake and aware during a complex partial seizure is not having a seizure? What about those of us who remember? How about the few who even stay aware during, and remember having, a fucking tonic clonic seizure for gods' sake??
Sorry, assholes, but some of us just don't conform to your narrow way of thinking. You are doctors. You learn stuff every day that you didn't know about before. Shit happens that hasn't been taught in your medical classes and textbooks. If someone comes to you experiencing symptoms of severe bipolar disorder, but they aren't typical and exact according to your precious textbooks, do you just diagnose them with mild depression and mood swings, throw some bottles of pills at them, and tell them to come back in three months? I bet you do. Do the research. Learn about your patients. And for heaven's sake, listen to them!
We know how we feel. You only know how we feel because we tell you.

Sorry. I had to get that out.
I'm done now.
I feel better.

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