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And yet another email from a well-meaning stranger who insists that if only I would stop all my medications and eat certain foods for the rest of my life, I would be completely healed and all my disabilities would vanish. Ah, willful ignorance, my nemesis, we meet again.
Dear Idiot: If you happen to read this, allow me to correct your incredible errors. No one should ever attempt stop any prescription medication without consulting their doctors. No food or combination of foods can cure medical conditions that began with brain damage from birth. It is extremely important to eat a healthy, balanced, fresh, whole diet. Such nutrition will absolutely have a positive effect on overall health, immunity, and various bodily functions. Such nutrition will even contribute to the body's own amazing healing powers. However, to claim that food, and food alone, is the one and only necessary treatment for every conceivable ailment is irresponsible, ignorant, and stupid.
Trust me, I get where you're coming from. I was raised for twenty years on supplements, herbs, vitamins, fresh food, exercise, and the occasional pill to deal with a temporary ailment. I didn't touch a long-term pharmaceutical drug until my late twenties. And do you know what happened when I did? It changed my life. Certain drugs began to control my seizures, anxiety, depression, nerve pain, muscle tension, body spasms, and other major neurological and physical disabilities. I had no idea how wonderful modern "Big Pharma" could be when it was applied responsibly. You see, I had spent so long believing in the mantra of "Big Pharma Is Evil" that I ignored dozens of symptoms and attempted to heal myself with supplements and holistic treatments that did not help in the ways I actually needed. I scoffed at suggestions of prescription drugs. I snarled at the thought of being on long term painkiller drugs. How could I? I would never trust that awful killer Big Pharma! Guess what? I was a complete idiot. I was so stupid that I let myself go on for years with symptoms and syndromes building up until I had no more choice - I had to get professional help.
I am forever grateful for the pharmaceutical drugs that I take. They really did save my life. But hey, I will never, ever tell anyone that they should do what I did, either go totally holistic or totally pharmaceutical. I believe so strongly in the balance of the two things that I still take my supplements and alternative treatments every day. I make sure that every herb, vitamin, food, and exercise works as well as possible with my "evil scary Big Pharma drugs." This has been such a beautiful thing for me that I plan on doing in until I die.
Yes, my symptoms still flare on a regular basis. Yes, often the only thing that soothes my pains and aches and twitches are those pharmaceutical drugs. But do you know what I will never want? I would never want anyone to hear my story and assume that they can live with a disease, disorder, or illness and heal themselves just by eating a bunch of fruit. As much as I love all that fruit, I eat it as food and as supplemental medicine. I live in the 21st century, in an age of powerful medicines; I can eat all the roots, leaves, powders, elixirs, fruits, and vegetables I want, but that will not cure any of my medical conditions. I accept that and I embrace that.
And here's an amazing fact: Many of those evil, scary pharmaceutical medicines were extracted and synthesized from good old food, herbs, plants, trees, coral reefs, and all sorts of glorious, fantastic things found in nature. Isn't that wonderful? Sure, a great deal of sciencey things happen to turn nature into drugs. But without nature, we would not have medicine. So don't you fucking dare tell me how I should treat my health conditions. If I wanted to ask, I would have asked. And you could have just made a kind suggestion. I probably would have thanked you and smiled and done some research. So be nice. Typing this whole thing out took some time. And now, if you will excuse me, I need to take a painkiller to ease the fiery pain in my hands and wrists.
Thank you for reading. I wish you good health for all your days.

Date: 2012-08-21 01:06 am (UTC)
From: [identity profile] shaula82.livejournal.com
I'm so sorry you have to deal with this kind of people. I guess that despite your own research and experience, and your healthcare professionals' knowledge, you just happened to miss the "one thing" that would magically make everything ok. Grrrr. I wonder if people like that understand that "nature" and "natural" are not inherently "good" - there's plenty in nature that would harm or kill you, plenty of irritants, allergens and extremely toxic elements.

Date: 2012-08-21 01:33 am (UTC)
From: [identity profile] phoenixsansfyr.livejournal.com
I'm sure this person doesn't realize how many poisons are on their organic fruits if they don't wash said fruits before eating them.

Date: 2012-08-21 02:04 am (UTC)
From: [identity profile] brightlotusmoon.livejournal.com
And that makes me laugh. Loudly.

I know a few parents who are trying to raise their toddlers on completely organic, holistic stuff, and that's great, but the kids have epilepsy, cerebral palsy (one kid), ADHD, lupus (another kid). And, well, as they grow older, drugs will probably have to be the best thing. I mean, sure they can still do that holistic stuff, but I seriously hope the parents balance everything out. I'd hate for a child to die or suffer further damage from, say, status epilepticus and severe inflammation.

Date: 2012-08-21 02:14 am (UTC)
From: [identity profile] phoenixsansfyr.livejournal.com
Agh, I would be hard-pressed to not smack them! That's not good for the poor kids :/ I'm like you - holistic in conjunction with big pharma. Tiger's balm works well for some things, flexeril for others. Nothing but imitrex is going to fix my migraines. Upset tummies I will try lots of things before breaking out my Zofran or Phenergan. That sort of thing... But I'm also a practicing herbwitch, and my suggestions to others are merely suggestions; I'm not going to recommend the same thing to everyone, and I have the benefit of knowing a lot about Western medicine to go along with my tinctures and other remedies. But no medication is one size fits all, and no LIFESTYLE is one size fits all. Suggestions are always welcome; what worked for you may be something that works for me. But no presuming that we are all the same; that's why there are loads of different remedies for the same conditions.

Date: 2012-08-21 02:31 am (UTC)
From: [identity profile] brightlotusmoon.livejournal.com
Precisely. I've been trying to explain this to people for years. I've been both smart and stupid about it all, so I think I know what works for ME. But since I wouldn't know what works for YOU (and anyone else), I wouldn't dare to insist on this or that. Now, if someone wanted to try a treatment that I take and know well, I am more than happy to discuss and teach. But first I need to make sure it's what they want and can tolerate.

Date: 2012-08-21 02:40 am (UTC)
From: [identity profile] phoenixsansfyr.livejournal.com
I'm always a little over zealous and will recommend without prompting, but I also know my audience. My very holistic friend I will recommend a tincture to before I ever say a word about pharmaceutical remedies. You're pretty open to either/or - and you already know where you're coming from, and there's not much left I can recommend in terms of holistics, but there's always the chance of something you haven't heard of or been prescribed yet. My husband? Depends on the complaint; same for me. If someone tells me to use anything holistic other than hormonal birth control for that particular complaint, they are being beaten upside the head with a half brick in a goddamn sock.

Date: 2012-08-21 02:40 am (UTC)
From: [identity profile] brightlotusmoon.livejournal.com
Oh, I am exactly the same way!

Date: 2012-08-21 02:42 am (UTC)
From: [identity profile] phoenixsansfyr.livejournal.com
Exactly! (like my Pratchett quote there? ;-))

I wish everyone knew their audience and weren't so goddamn holier than thou. Agh. Half bricks in socks for EVERYONE!

Date: 2012-08-21 02:50 am (UTC)
From: [identity profile] brightlotusmoon.livejournal.com
I loved it! I almost missed it.

Just half bricks?? ;)

Date: 2012-08-21 11:28 am (UTC)
From: [identity profile] phoenixsansfyr.livejournal.com
Of course, a half brick is the perfect weapon!

Date: 2012-08-22 12:46 am (UTC)
From: [identity profile] sunnysky.livejournal.com
ugh; i'm so sorry you have to deal with that! i think there are lot of great things the proper diet can do, but seriously? i can't believe people do this to you. ♥

Date: 2012-08-22 03:49 pm (UTC)
From: [identity profile] koemiko.livejournal.com
Nothing much to add really, but:

No food or combination of foods can cure medical conditions that began with brain damage from birth.

Did you get them at birth...? Or during birth? Or did it just happen as you developed? Did something happen?

I apologize if I'm being intrusive... I'm both interested in medicine (vaguely) and have a thirst for knowledge. ^^;

Date: 2012-08-22 07:11 pm (UTC)
From: [identity profile] brightlotusmoon.livejournal.com
Oh, it's fine to ask! I don't mind at all.

It is suspected that the damage began during my very premature birth, then continued in the days and weeks after my birth. My lungs collapsed several times, particularly my right lung. At that point in 1979, there was no surfactant to replace the natural compounds that would have surrounded and protected my lungs, since I was born so early in gestation. So the lack of oxygen destroyed certain brain cells and damaged other parts of my brain, resulting in white matter death, or periventricular leukomalacia. I was in respiratory distress quite often since my lungs were underdeveloped. My brain never fully developed, resulting in cerebral palsy and other damages.

Feel free to do some research and ask more questions! I love questions.

Date: 2012-08-23 04:33 am (UTC)
From: [identity profile] koemiko.livejournal.com
Ahh... it seems like it's very difficult to diagnose. How old were you when you were diagnosed?

Date: 2012-08-23 01:47 pm (UTC)
From: [identity profile] brightlotusmoon.livejournal.com
I was two or three, I believe? I wasn't crawling properly and my limbs were spastic and twitchy. I wasn't walking properly. But it was mild compared to most cerebral palsy cases, which was why it took a while for my parents to realize something was wrong. Luckily, a doctor saw it right away.

Date: 2012-08-24 07:47 am (UTC)
From: [identity profile] koemiko.livejournal.com
Mmm... from what I read, it's usually speech patterns that help make the diagnosis.

Still, all of that's very interesting. ^_^

Date: 2012-08-24 06:22 pm (UTC)
From: [identity profile] brightlotusmoon.livejournal.com
My speech patterns weren't really enough to make the diagnosis, since it was my body rather than my voice that gave it away.

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