brightrosefox: (Default)
I wear a dark green Russian Amazonite ring on my spastic hemiplegic left hand to represent cerebral palsy. I wear a purple charoite ring on my right hand to represent fibromyalgia. I wear purple lepidolite bracelets, blue kyanite bracelet, labradorite bracelet, fluorite bracelet, purple charoite clear quartz pentacle pendant, to represent all of my awesome disabilities of which I am proud.
Because I can. Because colorful gems are cool.

*Obvious Disclaimer Is Obvious*
Just because I have purely personal anecdotal experience that crystals and stones have healing powers does not mean that crystals and stones will work for anyone, and it does not mean that other people would have the same experiences. I am fine with being mocked, belittled, and teased.

http://www.crystalhealingforwomen.com/amazonite.html
http://www.crystalvaults.com/crystal-encyclopedia/charoite
http://www.crystalvaults.com/crystal-encyclopedia/labradorite
http://www.zoultier.com/gem-historical-metaphysic-zoultier/lepidolite-historical-metaphysical-healing-properties
http://www.controverscial.com/Flourite.htm

"Lepidolite is a type of mica, it is shy and created of many layers of hexagonal plates. It occurs in sparkling masses around pink tourmaline crystals. Due to it's cleavage, as with most mica, Lepidolite is rarely faceted. It is rich in lithium, which is what lends it's beautiful color. Lepidolite cracks and breaks easily.
Placed on the body, Lepidolite is used to locate the site of the body's disease; vibrating gently to indicate the source.
Lepidolite will:
strengthen the immune system, restructures DNA, enhances the generation of negative ions;
relieve allergies, exhaustion, epilepsy and Alzheimer's;
detoxify for the skin and connective tissue;
assist in an excellent stone for menopause, especially as an elixir;
be laid directly on painful parts of the body, it helps with nerve pain, sciatica, neuralgia and joint problems;
be known as a powerful pain remover, it can also reduce the ill-effects of anesthetic and dependency on medications, alcohol, tobacco or food; and
also told to provide a wonderful shield against the effects of modern pollutions.
Lepidolite is:
a stone of calm, trust, and acceptance;
extremely useful in the reduction of depression as well as stress;
used to halt obsessive thoughts, and relieves despondency, as well as overcomes insomnia; and
supportive in releasing one from addictions and complains of all kinds, including anorexia;
known to clear out all of the redundant messages and voices form the past that hold us back from happiness and/or success;
an aid in attracting supportive friends and colleagues, as well as bring opportunities to succeed; and
will help any and all living in unavoidably stressful experiences (such as city dwellers) to maintain a calm, and serene center.
Due to its calming properties and its often vividly purple color, Lepidolite can be used in rituals or carried to promote spirituality. It is a mineral carried to attract good luck, it also drives off negativity, although it's protective properties are not extremely strong. To promote a restful nights sleep free of nightmares, place Lepidolite near the headboard of the bed.
Called a 'stone of transformation" Lepidolite releases and reorganises old psychological and behavioral patterns, thus inducing change.
Stay Healthy!"

"Fluorite is highly protective and is a beneficial crystal to help guard one from picking up negativity or negative energies from those nearby. It cleanses and stabilizes the aura and is extremely effective against computer and electromagnetic stress. Spiritually, Fluorite grounds and integrates spiritual energies. It heightens intuitive powers and makes one more aware of higher spiritual realities. Psychologically, Fluorite dissolves fixed patterns of behavior and opens the door to the subconscious, bringing suppressed feelings to the surface for resolution. Dissolving fixed ideas, it helps one to see the bigger picture. This crystal dissolves illusions and reveals the truth. It can be very helpful when one needs to act impartially and objectively. Fluorite increases self-confidence, improves physical and mental coordination and counteracts mental disorders. This crystal is an excellent learning aid, increasing concentration. It helps one to absorb new information and promotes quick thinking.
Emotionally, Fluorite is stabilizing and helps one to understand the effect of the mind and emotions on the body. In relationships, it teaches the importance of balance. In healing, Fluorite is a powerful healing tool, drawing off negative energies and stress of all kinds. It cleanses, purifies and dispels anything within the body that is not in perfect order. Fluorite helps with infections and benefits teeth, cells and bones. It repairs DNA damage and is powerful against viruses. Fluorite is beneficial for colds, the flu and sinusitis. This stone alleviates arthritis, rheumatism and spinal injuries. Stroked across the body towards the heart, it provides pain relief. Fluorite rekindles sexual libido.
Fluorite is one of the healing crystals that everyone MUST have. I literally use it every day in a protective grid at my computer desk, to guard against excess electromagnetic radiation, to keep my work flow and focus in harmony and to heighten my intuitive gifts. It guards against negativity and unwanted outside influences, psychic manipulation (think the media) and stress of all types. One simply cannot overuse Fluorite or even have too much of it! On the physical level, it is a strong healer for almost everything, but especially bones, joints and teeth; surgery, injuries like bruises and cuts; colds, flu, viruses; pain relief; heals the skin including shingles; as well as disorders in the stomach and intestines. Position the Fluorite over the affected area - you can even tape it or bandage it to an area that has a cast or stitches where it can work 24/7. Mentally Fluorite is a strong intellectual and learning crystal, It is extremely organizing for the mind and can be used in cases of ADD and ADHD where the brain is "mis-wired." It is a good crystal to use in order to coordinate the body and mind together. Emotionally it is stabilzing and helps balance mind and emotions. Fluorite heightens mental abilities, assisting in rapid organization and processing of information and can bring mental clarity and stability to an otherwise chaotic situation.
Due to its powerful ability to absorb negative energies, Fluorite should be cleared often."
brightrosefox: (Default)
I had so much amazing sushi it was amazing. I watched with amusement as one friend requested lobster miso and got, literally, a bowl of miso with a lobster claw in it... in the shell, and no tools save for chopsticks. I wanted more sushi, and they let me have more sushi because I fucking could, oh my gods, even the waitress was impressed.
I walked around a shopping area at night with friends and I didn't have a cane and it was all fine, and I socialized easily with four good good people, and when I woke up in the late morning, I hurt so badly that the only way I could get out of bed and walk anywhere, say, to the bathroom, was to put myself back into a half-asleep state.

And then... then, I got asked to weigh in on a discussion about how "our organic bodies must learn to heal themselves without medicine blah blah blah" and I was too tired to give a smackdown, so I just warned that HOLY NAKED CATS CHRONIC ILLNESS AND DISABILITY DOESN'T WORK LIKE THAT YOU ETERNALLY FLOATING-HEAD HIPPIE WANNABE. Never tell someone who needs certain medications to function to just quit those medications, or you will have to deal with some very, very irritated cripples.
Like, HI, this drug here, synthetically derived from that plant over there, is saving my life, and fuck you. Yes, yes, the medical community likes to "push" drugs and all, but sometimes those drugs keep people alive, so seriously shut your rainbow-dribbling mouth.
I have spent over a decade writing essays and blog posts about this, starting from that floating head holistic hippie phase of Only Supplements and Essential Oils and Meditation, to Okay This Requires a Chemical Drug So I Don't Die But Can I Still Take The Supplements to Goddammit I'm Just Going To Balance Holistics, Botanicals, and Pharmaceuticals forever.
And the next person to use the words "poison" and "Harmacy" in conversation with me will be threatened with getting hidden completely if not blocked from my forum feeds. Because I really am a serious holistic and scientific advocate for various healing plants and botanicals. I am a shaman in training. But chemicals come from various places. And sometimes, the chemicals extracted by scientists have a better effect than the pure volatile chemicals.
You think side effects from FDA drugs are bad? Eat a whole plant and spend a few hours writhing in hallucinatory agony. And GUESS WHAT: some people never even get bad side effects. Trileptal. Zoloft. Baclofen. Soma. Tramadol. Codeine. Klonopin. Guess what? I'M NOT A FUCKING ZOMBIE. Guess what else? I AM BETTER THAN I HAVE BEEN. So you know what? Float on. The cloud are gorgeous up there.
But my body cannot organically heal itself, sorry. If you're on of those people who like to say, "I'm not against pharmaceutical drugs at all, but have you ever considered just letting your body work on itself naturally?" You will be met with raucous laughter that would make the Joker question my sanity.
I have been dealing with this since my early twenties. I'm gone through the ENTIRE gamut of medicines after being raised literally on vitamins and homeopathy and various therapies and acupuncture. I will not claim to be an expert. But I've had life experience.
So hey, if you're going to cheerfully toss out a casual, callous thought about how someone shouldn't take a pill anymore and see what happens, you really don't know. You don't know. And this is why I try to go out there and help educate, advocate and activist. Because if I don't, people will remain head-floating.
I was once head-floating, and it was a good high while it lasted. This is why many of my friends are scientists, medical doctors, medical students, researchers, etc. I ask a lot of questions. Because I never want to be that head-floaty again.

Anyway. I applied a cream with special oils to my chakra points on my feet, palms, and ears, and my forehead. I took my "harmaceutical" drugs. I stretched. I did acupressure. I meditated. I did my personal compensated form of qigong (of which yoga is only a small part, so don't bother), I recited various phrases to relax myself and let my darker emotions drain away.

In conclusion: If I specifically as for opinions about something incredibly specific, I ask that people stick to that topic. Unlike my friend's post, which was derailed by a hippie wannabe who happily invalidated everyone by insisting that all we need is our own organic body to be healed. Sorry, friend. I hope that drug is going to work well for you! I've never tried it, as I haven't needed it. But I'm happy to help with research.

Anyway. Sushi makes things better. Lots and lots of sushi. Lots. Sushi.
brightrosefox: (Default)
Seizure happened in the kitchen. Jupiter meowed and rubbed against me while I crouched. Adam came in and gently lay me on the floor. My eyes were open and blank. Adam touched my face and reached for my mind, and I spasmed and gasped and blinked. I asked why I was on the floor. Adam helped me up and stood me against the large freezer. My memory is swirling. Alicia is holding me. Earlier, Adam said he told his boss, a fellow animal lover, that he needed an extra day to care for his wife. I rolled my eyes and said that was not necessary; that I was fine. Never mind. It was so dark and so white equally braided as order and chaos magics. I was spinning at ninety-nine percent light speed and thirty-five miles an hour. The world was elsewhere. A few seconds lasted a thousand years. Adam suggested I go upstairs and rest. Jupiter is suggesting a cuddle. I am thinking coffee and clonazepam and baclofen. I am made of light and love and pure order-chaos magic in its simplest form. I can give myself the right strength. May be that I can regenerate. As brightly and intensely as a Time Lord. I always shine enough for everyone.

brightrosefox: (Default)
Because I can never recall the actual daily Pain and pain relieving supplements off the top of my head that I personally take:
MSM, Pau D'Arco, Sangre de Drago, Sea Buckthorn, Vinpocetine, Nymphaea Caerulea, Serrapeptase, Noni extract, Mangosteen extract, Cayenne extract, Kava extract, Passionflower, Ashwagandha, L-Tyrosine.
There we go!

(Disclaimer: My body is not your body. My pain is not your pain. My chemistry is not your chemistry. My neurology is not your neurology. Your mileage may vary.
If you choose to research these supplements, and especially if you choose to take any of these supplements be reasonable, rational, and cautious. These supplements may not work for you the way they work for me. They may not work at all.
If you wish to purchase and test any of these supplements, I suggest the following websites: SwansonVitamins.com, Vitacost.com, PuritansPride.com, which all make quality products that I trust. I am not responsible for anything except what I type and say.
Please do not ask me simple questions that Google can answer, such as "What does this/that supplement do and how and why?" If you are unable to do a Google search, tell me why and I shall provide links. However, I am not a medical practitioner and I only study holistic medicine as a hobby. I do not know everything. It is your responsibility to do your own research and make your own decisions. However, I am happy to answer questions about how these supplements have worked with me, why, how, etc. Please holistically drug yourself responsibly.)

Lights.

Jun. 8th, 2013 10:03 pm
brightrosefox: (Default)
The thing about brains is... brains are so complicated. Brains are so complex. Brains need outlets, too. Words are good enough for my brain. I just want to feel safe when I say words out loud. All I've wanted to do was help people. To say, in public, loudly, "You have someone who will listen. You have someone who understands. You have someone who knows what it means. You have someone who will hold you through the worst of the darkness. You have someone who will always shine brighter than any light." Ever since I was a teenager, I was told that I radiated a pure sort of light that drew other minds close. And every time someone who has never seen that light tells me that I'm causing upset or wrongness, that light falters, because how could someone slap me across the face just because I want to speak out through the darkness? I will never stop speaking out through the darkness. I don't care what it costs anymore. I will talk about my brain and its ultimate complications and complexities and sicknesses and handicaps, and somewhere, someone will always be listening. And they will talk about their brains, and we will share our stories, because that is how stories begin.
"Once upon a time, there was a warrior princess born with invisible armor to battle all the damage inside her that would follow her for the rest of her life. For a long long time, there was nobody she could talk to who truly understood. And then, suddenly, there were dozens of people who could understand. And the warrior made it a mission to talk to them all and keep talking. She kept talking even as others misunderstood her, scorned her, and scolded her, since they didn't realize that what she was doing was baring her life wide open, so anyone drawn to her light could share their lives too. She was told, 'Stop putting yourself out there. Stop talking so much about what's wrong with you. Stop focusing on the negative.' And she looked at them, finally, and said, 'No.' Because there was nothing negative. There was no wrongness. There was only her life. And her life was only positive and right. There was laughter, and amusement, and silly things, because even as the pain overwhelmed her, she would keep going, keep laughing. She told stories to those who wanted to listen. She helped many people learn about themselves. She became a teacher, an advocate, a true light in the darkness. She became strong and brave because she had to. And she will have stories to tell for the rest of her life."

bluedarklotus

dragongirlsky

auroradragon

I admit, I got a little choked up while writing this. Maybe I do feel much more defensive and upset and naked to criticism than I thought. I'm really, really trying to work on letting all that go. It certainly doesn't help my mental health.
brightrosefox: (Default)
It was 1:40 in the afternoon by the time I finished this post; I began at 1:09.
I woke up at 11:30 only because my husband roused me and put a can of energy drink to my lips while helping me lift my upper body, right before my cat Rose sat on me and licked my whole face, until I managed to fall carefully off the edge of the bed, hobble to the bathroom, and take a hot shower while leaning against the wall. Wrapping my hair in a towel at least helped stretch my neck and shoulder muscles. I stumbled back to the bedroom, got partially dressed, swallowed my morning drugs and supplements (Trileptal, Klonopin, Ultram, Picamilon, L-Tyrosine, Guarana, Hyaluronic Acid, Ashwagandha, Devil's Claw, DMAE, Raspberry Ketones, Sea Buckthorn) with coffee (made with cocoa, milk, cocoa, sugar, and cocoa). I got fully dressed fell onto the bed, struggled back upright, performed very gentle exercises reminiscent of certain basic yoga poses with extreme modifications, pulled some muscles in my lower back, applied heat massage, complained to my cats out loud since they couldn't tell me that my only limits were mental, bad attitudes, set by myself, because my cats loved me without telling me how to do things.
And so now I am sitting at my work desk with my cocoa coffee, Futurama via the Roku box on my 20 inch flat screen TV, the fish tank full of happy serene fish doing happy serene fish things. The codeine and baclofen I just took have taken effect, and I feel human. You know what it's like to not feel human, or normal, or easy, right, internet? Are you sure? Because I see so many articles about how easy it is to break limits, or not even have limits by - get this, ha ha - pretending you don't have limits. I just wanted to show you what my days are like. Because it's going to continue. Soon, I'm going to take afternoon supplements (MSM, Biotin, Inositol, Noni, Mangosteen, Goji, Pau D'Arco, Shilajit, NAC, and the drug Soma - and if you worry that I take too many pills in a day, I am going to laugh very loudly and point to all the people who take even more pills, by which I mean prescription pharmaceuticals alone because supplements don't work for them).
And then I will gently exercise some more, and have I mentioned that through all this I write and edit fiction stories, that novel I sent to a major publisher and agent, blog posts, and long discussions with beloved online friends? And I will read three books at once, maybe four, bit by bit, and since my husband is actually home from work I will spend time with him. And then in the evening, I will take my nightly medicine (Ogestrel-Hi, Trileptal, Zoloft, Soma, Apple Pectin Fiber, Chia Seed, Passion Flower), and crawl into bed like a bruised person, hopefully make fantastic love with my husband and have a wonderful, pain-relieving orgasm or four that will help me sleep blissfully (because sometimes it hurts too much to have sex but I do it anyway because it counts as medicine). And then I will wake up, either to see my husband off to work or to rouse myself, probably not until after 10:00 AM or so, and it will all continue, probably with additional errands and house chores.

There it is, internet. You have now seen my daily disabled life. I got lucky when I was approved for SSDI in 2012; I am lucky that I get enough monthly payments to keep me going alongside my husband who works himself bruised. I am lucky that all my limbs actually work, even if they hurt constantly in various ways. I am lucky that I haven't been to a hospital since 2007, and that was for a concussion and seizure. I have a lot of luck on my side. I also have a lot of limits. So, dear internet, please do not tell me what I should do with my limits unless you mean to help me move those limits a little higher so I don't need to push, I just need to move up more. Pushing my limits is fine, but I would rather move those limits up more so I have more room to go before I run up against those limits again.

Ah - I forgot to add that on the days when depression and anxiety attack, I am often physically unable to do much for several hours. But nobody needs to hear about that. Clinical depression is still stigmatized so severely that I still feel very uncomfortable discussing it. Also, I didn't mention the tiny complex moments when the cerebral palsy trips me up in many ways, because that would take forever. And I didn't mention the specifics of epilepsy, or fibromyalgia, or any neurological and neuropsychological conditions like ADHD Inattentive and OCD and Dyscalculia. Nor did I mention the specifics of fibromyalgia or various nerve issues, because who cares? That's boring. But it is all there.

Also, for those wondering why I take raspberry ketones, which have been touted as some sort of weird weight loss miracle:
http://ezinearticles.com/?Raspberry-Ketones---6-Health-Benefits-Of-This-Natural-Remedy-Now-Revealed&id=6875845
They are actually highly antioxidant, a brain tonic, an anti-inflammatory, slightly analgesic, full of good omega fatty acids, and good for digestive health, with some research showing that it can slow cellular aging.

And I didn't mention the daily skin moisturizing. If I don't apply specific healing oils and extracts to my face, neck, chest, hands, arms, and legs... it's not a happy day.
http://www.etsy.com/listing/99942639/sale-41-marshmallow-and-manuka-soothing
http://www.etsy.com/listing/84293185/2in1-manuka-honey-amazonian-body-butter
http://absilk.com/ssbodylotion.html
http://absilk.com/extremecream.html
http://www.etsy.com/listing/111067887/beauty-by-brazil-all-natural-amazon
https://store.abbeystclare.com/skin-care/rice-olives-cleansing-and-facial-serum-amazing-skin-treatment-melts-away-eye-makeup.html
http://www.skinactives.com/EMUlator-Oil.html
http://sweetsationtherapy.com/item_339/LumiEssence-Body-Organic-Advanced-Brightening-Repair-Treatment-with-Kojic-Acid-Arbutin-Vitamin-C-5oz.htm
brightrosefox: (Default)
So, until I see a full end to these violent migraines, brain pains, and flares of fibromyalgia, sciatica, chondromalacia patella, knee arthritis, ulnar nerve entrapment, hypertonia spasticity with hemiparesis, hemiparetic ghost sensations, itching, shaking, hay fever, exhaustion, true muscle weakness, and hypersensitivity... I will be pretending like all hell to be a normal ordinary human. Nothing to see here, nope, move along...

What with husband working a computer trade show job in Manhattan for the next couple of days, my sweet Charlotte will be coming over every day to help me work on organizing the rest of the house. Gods know I will need such help.

Also, I have a plush red fox and a plush gray wolf to cuddle, and my darling Serenity the Pony to whisper to, kiss on the lotus bud blaze mark on her forehead, brush her long long hair with a boar brush and wood comb.

And naturally, there is my wonderful balance of pharmaceutical pills and supplement pills.
Klonopin, Codeine, Ultram, Soma. Ashwagandha, MSM, Yerba Mate, Devil's Claw, Raspberry Ketones, Mangosteen, Moringa, Goji.
brightrosefox: (Default)
I often "cross post" between here and Facebook, since sometimes stuff I say there, in increments, can be transferred here as stories and ruminations.

Lately, I've been getting genuinely angry at many Facebook friends and acquaintances - and it takes a fucking lot to make me genuinely angry. Multiple people on my Feed have been reading and watching the internet and talk show versions of medical conspiracy theories and tabloids - technincally slightly true, definitely not completely true. "So, these doctors on this daytime talk show or YouTube segment or extremely biased blog are saying that almost every serious health problem in America can be linked to pharmaceutical drugs or the side effects from those drugs. So, have fun taking those deadly dangerous pills! I'm going to be all smug and condescending because I don't take any pills at all even though I probably should for medical conditions I refuse to talk about."

Have you ever had a triggering of your rage gag reflex? Not quite retching, but a mental version of "I am about to explode rage all over this!" because something has truly, severely pissed you off. That has been me over the last couple of days. Some very very intelligent friends have been reposting these ridiculous claims, and my response is usually double facepalm and "For fuck's sake, take everything you read and hear on these blogs and talk shows with grains of salt, please, please, please." Like... okay, I like watching the Doctor Oz show every now and then. Quite often, he is extremely insightful, helpful, and correct. But he is also trying to get high ratings. Same for that talk show The Doctors. Who also used to be Oprah's friends. A panel of four core doctors from different specialties talking about medical breakthroughs, things that are good and bad for you, et cetera. Apparently, a recent episode featured the ER physician claiming that pharmaceutical drug side effects were causing most of the country's medical problems. At which point I facepalmed, went online to trusted websites, and proved him essentially wrong with a few keystrokes. It turns out that after the episode aired, multiple physicians and specialists who were not mere ER doctors called bullshit and blasted the episode and the hosts for being irresponsible. Again, ratings ratings ratings. But so many Facebook friends are falling for it that I wound up "hiding" their posts because I was getting seriously insulted. Funny that this happened after I made a status post about how grateful I was for the pharmaceutical drugs I've been taking to help mitigate my conditions.

Look, pharmaceutical drugs are not the Best Things Ever. They have serious side effects for many people. They alter the body and brain in ways that can be more damaging than the conditions they are treating. BUT. For millions of people, they are lifesaving. They have treated the symptoms of thousands of crippling diseases successfully. For many patients, they are the only options, because holistic medicines, supplements, and alternative therapies haven't worked for those patients (and of course, holistic medicine is either The Best Only Medicine Ever or Quackery Placebo Bullshit). So, to say something like "I heard from a TV doctor that pharmaceutical drugs are the main cause of most medical problems" and to follow it up with a slap in the face like "Good luck taking your pills, guys!" is... a slap in the face. Especially if that doctor was being paid to exaggerate findings or to promote some sort of media, to gain readers or viewers. And especially if the people repeating these claims hadn't seen a doctor themselves in years due to lack of opportunity, fear, hatred, or simple mistrust of doctors - which makes me laugh my ass off. "I don't trust doctors, doctors have never made me feel better, but this one doctor said this thing and I believe it completely and so should you!" It is one thing to drink the Kool-Aid. It is another thing to splash the plastic cup of Kool-Aid in my face.

You know, this is why doctors practice medicine. Practice, not master. It is a practice. Many many times, they get things wrong. Doctors are not perfect. Nobody is perfect. Not even you. So, dear Facebook people, please double check your facts, get second opinions, and actually think about it before you quote what sounds like medical conspiracy theories.

In the meantime, I'm going to sit back, smile, watch silly cat videos, and take my evil pharmaceuticals and my quack herbal supplements that are all maliciously working wonderfully to effectively relieve the worst symptoms of my twenty separate medical conditions. Damn them! *nods*

Also, in May I have my first appointment with a licensed craniosacral therapist. Having had craniosacral therapy twice, with extraordinary results, I am eagerly anticipating this.
brightrosefox: (Default)
https://www.change.org/petitions/chairman-murphy-and-ranking-member-degette-stop-threatening-the-hipaa-rights-of-people-with-psychiatric-disabilities
To quote a dear friend:
"I am a fully-functioning human being, mentally ill people pose NO greater threat to society than non-mentally-ill people, and we are entitled to exactly the same protections as every other person. Do not discuss these issues without allowing mentally ill people to educate you. Do not discuss these issues until and unless you are aware that mentally ill people are more likely to be the VICTIMS of violence than the perpetrators. Inform yourselves and actually talk to the people involved. Don't bring your own preconceived ideas to the table, call them fact, and suggest policy based on them. That's inhumane AND unlawful."

And I would like to add:
There are very different types of crazy. What I call Hollywood Crazy or Hollywood Mental Illness is usually the kind that is an exaggerated version of a disorder that is seen as a danger to oneself and others. There are people out there so terrified of this that even if they are mentally ill, they will refuse to say anything because ignorant family members might see them as Hollywood Crazy (see: "I am not crazy! I have never been crazy! Don't call me crazy!" often intoned with an air of fear, upset, prejudice.) And in those minds, Hollywood Crazy might mean commitment to a ward or facility, which is often seen as a terrible thing, not a helpful healing thing. We seriously need to change how we view mental illness and mental disability. There are so many people living with a form of mental illness who absolutely refuse any sort of treatment purely out of fear of ridicule, shunning, disconnection from family, even forced unnecessary commitment to hospitals. We need to show them that the stigma is human, driven by fear that breeds hate, and that there is no shame or fear in getting some sort of treatment.

***

Dear pharmaceutical drugs: I know people hate you and think you are poison, but I just wanted to tell you that I greatly appreciate your role in saving my life.
I will always balance you with holistic remedies, allopathic medicine, and whole body treatments. But I will always be grateful for the way you have helped me feel better, and even normal, under certain standards. I am one of those people who rarely experience the various side effects listed - which really, are simply issues reported by test patients during trials, which may or may not actually affect anyone. It took me years to realize that. After all, many, many pharmaceutical drugs were initially derived and synthesized from plants, foods, and botanicals. I am not sure about recent years, but chemistry is chemistry.
I do not participate in the stigma and hate toward you. Of course, I am only speaking for myself and my personal experiences. I know so many people who really have been poisoned and "screwed up" because their chemistry reacted very badly to certain medicines, causing extreme side effects that led to even worse conditions. I cannot speak for them. But I can speak for me. And all I can do is be grateful.
One day, I will taper down until I need only very small dosages of the drugs I am taking. That may be years from now. I will still need to take certain drugs for the rest of my life However, for the time being, I am perfectly fine with the pills I take. I cannot say that for anyone else - I am not anyone else.
I am always sad when I learn that so many other patients cannot handle certain medications or become worse due to negative side effects - that is horrific.
Yet as long as no one tries to convince me personally that my life would be better if I quit all my essential medications, I will nod and agree that we take too many prescriptions as a whole, and that negative side effects can be absolutely terrifying and can lead to worse problems. I wish there were more patients like me, who are are able to handle drugs without intense side effects.
And now I shall take the supplements that I take daily, to help balance the pharmaceuticals. Because the supplements work for me. And that is a completely separate debate for another post.

Oh, hell, might as well do that post now.
Depending on who you talk to, supplements and holistic medicine and alternative remedies are either the best thing and the only thing, or absolute bullshit and placebos. And then there are those who regard supplements as exactly that - supplemental. Alternative. Balancing. No big deal.
I grew up on vitamins and supplements, only being given pharmaceuticals when necessary. Now that I need to take over half a dozen pharmaceutical pills daily, I balance them as best I can with vitamins and supplements.
There are plenty of sick patients who are physically unable to take supplements and alternative treatments, as their bodies and brains completely reject or don't respond at all to said medicines. Which is why I bristle whenever someone insists that pharmaceuticals are all poison and only supplements and natural medicines are the way to treat illness. Nobody is the same. Everybody is different. What works for me may not work for you. People don't seem to understand this. People may never understand this.

And here, I submit a full list of every single diagnosis ever made in my life, and here I submit a full list of pharmaceutical medications and supplemental medicines, stored in both my Facebook Notes section and a document in Word.

Read more... )

And now, time for the daily supplements that I take daily because they work for me.
brightrosefox: (Default)
Good things: Taking 20,000 mcg (20 mg) of Biotin at once every day really does help with healthy hair and nail growth for me. Not necessarily longer growth, just better, healthier, stronger, shinier growth, which will in itself help with longer growth in the long run, and I did not mean to sound like a commercial, sorry.
(Disclaimer: I do this for myself because it works for me. If you want to try it, have fun, just do your research. Although, Biotin - aka B7 and BH - really is an awesome vitamin and gives me lots of anti-fatigue energy and helps lift my depression slightly.)

Also, NAC, N-Acetyl-Cysteine. Good for boosting my energy levels and such. And I was recently told it may work as a supplement for OCD, ADD/ADHD, mild depression, anxiety, bipolar, respiratory problems, and memory problems.
(Disclaimer: I do this for myself because it works for me. If you want to try it, have fun, just do your research.)

It is very important to put disclaimers on every supplement and holistic treatment. Because they do not always work for people. Some may not work at all. But I will only talk about stuff that works for me. If other people want to try it, they are free to do so, and I'm happy to answer questions, but I will never be one of those "holistic proselytizers" who insists that everything is awesome. I'm still not sure about the whole "water homeopathy" even though I take homeopathic tablets like arnica and ignatia in tablet form all the time and they work wonderfully, so I'll say I like homeopathy in non-liquid form, I guess, I don't know, I just know something works. Anyway, every body is different always all the time forever so nobody make fun, please.
brightrosefox: (Default)
Also, I am on slightly higher doses of drugs to ease the migraine, the anxiety, the OCD, the ADD, the potential return of depression and seizures, the spasticity, and the dreaded lumbar pain. So if anyone tries to talk to me, my voice or fingers may argl blarg wagl mluh. Just a little.

Feels amazing, though.

See, this is what happens when a person with true chronic pain takes her medication in proper doses when she actually needs the higher doses that were recommended by doctors. As in, "if you need a second dose, please take that dose, and don't try to pretend you can just push through your major chronic pains, because I have prescribed you these drugs at these doses at these pill amounts for a reason, which is for pain. It's fantastic that you take alternative remedies, but if you need these pain drugs which I have prescribed, you should probably take these pain drugs which I have prescribed, especially at the suggested dosages, and damn anyone who scolds you." (Seriously, this was what my pain specialist nurse told me, word for word.)

As holistic and supplemental as I prefer, I will punch anyone who accuses me of being potentially addicted to pharmaceuticals, since without them I would be screaming a lot. So, yeah, I love you, don't make me punch you. I am still hoping for telekinesis.
I'm off to take some supplements too, by the way. I hope that makes you happy.
 
brightrosefox: (Default)
I think my "give a fuck" just broke. It's bad enough that I'm in a major depressive episode and already filling up with self-loathing about everything I do and am. It's worse when I forget myself and defend my medication choices to a douchebag who is yelling at me with "All Big Pharma Is Always Evil Forever. You need to stop taking all your poison drugs and just eat these specific plants and herbal formulas, since they will cure your pain and your seizures and your depression and they will even heal your brain damage so you won't have cerebral palsy anymore."
I admit, I flew off the handle just a bit. You know, "Listen, moron, I did the purely holistic thing for twenty-something years, and then I was prescribed a seizure drug and a painkiller drug and a muscle relaxant which completely changed my life in many ways, because I had never known what it was like to have loose, relaxed muscles that didn't clench, spasm, feel paralyzed, or feel like burning. I mean, holy shit, people actually live like this normally? Is this normal? I should have done this sooner! Why hadn't I done this sooner?" And how I looked back on my other life and realized how stupid I was: because even if Big Pharma Is Truly Evil, sometimes they get it right. Sometimes just one drug, or three, can change the life of just one person in unimaginable ways.
And then I explained how I still use supplements and herbs and plants and holistics, and I carefully balance everything, and how I met with half a dozen different doctors who all decided I did not have an addictive personality and that it would be perfectly safe for me to take the wonderful drugs every day. And how strangers on the internet tried to call me junkie and addict without knowing a single fucking iota of a thing about me.
And I explained that because I was in chronic pain, constant agony, and major suffering that was not going to stop on its own, it was safe and fine for me to continue taking the drugs, and fuck everyone who tells me otherwise. And then I explained how sometimes I am in far less pain than normal and when I took one of those drugs, nothing happened. At all. So I was not becoming addicted, because I felt nothing if the pain was not great enough to require drugs.
And then I said a few more angry things about judging strangers because you are not actually concerned about them, you just want to project your personal bullshit onto someone who is doing something that perhaps you or a loved one used to do and it led to addiction and it was horrid for you, and perhaps you have made it your superhero mission to save everyone you encounter from the awful evil Big Pharma that destroyed your life, and perhaps it's easy to yell at people over the internet because you don't need to see their faces or show your face and you feel you have perfect control because the poor stranger is obviously spiraling downward into a terrible tragedy of dependency that only you can save them from.
And by "you" I mean "stranger asshole who decided she knew exactly who I was, what was wrong with me, what I needed, what I didn't need - because obviously those Big Pharma drugs were killing me rather than saving my life in multiple ways."
So, I sincerely apologize if anyone reading this feels slapped, because that is not what I'm trying to do. Normally, when someone gives me the "Drugs bad, herbs good" speech, I just smile and say, "Balance and harmony in all things. Every person is different with different responses to different treatments. Some patients cannot take supplements, and some patients need drugs to continue living a fairly easy life. I am very lucky that I can easily take pharmaceutical drugs and natural supplements in balance. Maybe some day, I will find a plant or vitamin that can legally replace all my prescription drugs forever. I doubt that, because I need certain drugs to keep certain illnesses in check, but if I can reduce the prescriptions and have a supplement as my main treatment, that would be wonderful. Until then, nobody needs to tell me what I should and should not do with my medical health treatments." And that is the most polite thing I can say.
brightrosefox: (Default)
And yet another email from a well-meaning stranger who insists that if only I would stop all my medications and eat certain foods for the rest of my life, I would be completely healed and all my disabilities would vanish. Ah, willful ignorance, my nemesis, we meet again.
Dear Idiot: If you happen to read this, allow me to correct your incredible errors. No one should ever attempt stop any prescription medication without consulting their doctors. No food or combination of foods can cure medical conditions that began with brain damage from birth. It is extremely important to eat a healthy, balanced, fresh, whole diet. Such nutrition will absolutely have a positive effect on overall health, immunity, and various bodily functions. Such nutrition will even contribute to the body's own amazing healing powers. However, to claim that food, and food alone, is the one and only necessary treatment for every conceivable ailment is irresponsible, ignorant, and stupid.
Trust me, I get where you're coming from. I was raised for twenty years on supplements, herbs, vitamins, fresh food, exercise, and the occasional pill to deal with a temporary ailment. I didn't touch a long-term pharmaceutical drug until my late twenties. And do you know what happened when I did? It changed my life. Certain drugs began to control my seizures, anxiety, depression, nerve pain, muscle tension, body spasms, and other major neurological and physical disabilities. I had no idea how wonderful modern "Big Pharma" could be when it was applied responsibly. You see, I had spent so long believing in the mantra of "Big Pharma Is Evil" that I ignored dozens of symptoms and attempted to heal myself with supplements and holistic treatments that did not help in the ways I actually needed. I scoffed at suggestions of prescription drugs. I snarled at the thought of being on long term painkiller drugs. How could I? I would never trust that awful killer Big Pharma! Guess what? I was a complete idiot. I was so stupid that I let myself go on for years with symptoms and syndromes building up until I had no more choice - I had to get professional help.
I am forever grateful for the pharmaceutical drugs that I take. They really did save my life. But hey, I will never, ever tell anyone that they should do what I did, either go totally holistic or totally pharmaceutical. I believe so strongly in the balance of the two things that I still take my supplements and alternative treatments every day. I make sure that every herb, vitamin, food, and exercise works as well as possible with my "evil scary Big Pharma drugs." This has been such a beautiful thing for me that I plan on doing in until I die.
Yes, my symptoms still flare on a regular basis. Yes, often the only thing that soothes my pains and aches and twitches are those pharmaceutical drugs. But do you know what I will never want? I would never want anyone to hear my story and assume that they can live with a disease, disorder, or illness and heal themselves just by eating a bunch of fruit. As much as I love all that fruit, I eat it as food and as supplemental medicine. I live in the 21st century, in an age of powerful medicines; I can eat all the roots, leaves, powders, elixirs, fruits, and vegetables I want, but that will not cure any of my medical conditions. I accept that and I embrace that.
And here's an amazing fact: Many of those evil, scary pharmaceutical medicines were extracted and synthesized from good old food, herbs, plants, trees, coral reefs, and all sorts of glorious, fantastic things found in nature. Isn't that wonderful? Sure, a great deal of sciencey things happen to turn nature into drugs. But without nature, we would not have medicine. So don't you fucking dare tell me how I should treat my health conditions. If I wanted to ask, I would have asked. And you could have just made a kind suggestion. I probably would have thanked you and smiled and done some research. So be nice. Typing this whole thing out took some time. And now, if you will excuse me, I need to take a painkiller to ease the fiery pain in my hands and wrists.
Thank you for reading. I wish you good health for all your days.
brightrosefox: (Default)
A coworker, who knows I'm into holistic skin care, just gave me a bottle of some bath oil (Healing Bath Oil) that contains my favorites, tamanu and sea buckthorn -- plus black seed oil. I think this is awesome.
I was reading up on black seed again, and as it turns out, it has been used throughout history as a contraceptive for women, as well as stimulation of menstruation and milk flow. I had assumed that neem was the only herb worth mentioning regarding contraception, so this is interesting. (I know a couple of women who use neem both externally and internally as a form of contraception, but I wouldn't want to take that risk, not until lots more studies are published confirming its effectiveness.)
Black Seed is very good for dozens of physical ailments, and it works pretty well for me. But I haven't used it in skin care yet. The oil has a very strong smell -- herbal and nutty and very dark. It's not the most pleasing fragrance, but I can tell it's powerful.
http://www.sweetsunnah.com/cgi-bin/category.cgi?category=blackseed_reports
brightrosefox: (Default)
A coworker, who knows I'm into holistic skin care, just gave me a bottle of some bath oil (Healing Bath Oil) that contains my favorites, tamanu and sea buckthorn -- plus black seed oil. I think this is awesome.
I was reading up on black seed again, and as it turns out, it has been used throughout history as a contraceptive for women, as well as stimulation of menstruation and milk flow. I had assumed that neem was the only herb worth mentioning regarding contraception, so this is interesting. (I know a couple of women who use neem both externally and internally as a form of contraception, but I wouldn't want to take that risk, not until lots more studies are published confirming its effectiveness.)
Black Seed is very good for dozens of physical ailments, and it works pretty well for me. But I haven't used it in skin care yet. The oil has a very strong smell -- herbal and nutty and very dark. It's not the most pleasing fragrance, but I can tell it's powerful.
http://www.sweetsunnah.com/cgi-bin/category.cgi?category=blackseed_reports
brightrosefox: (Default)
A coworker, who knows I'm into holistic skin care, just gave me a bottle of some bath oil (Healing Bath Oil) that contains my favorites, tamanu and sea buckthorn -- plus black seed oil. I think this is awesome.
I was reading up on black seed again, and as it turns out, it has been used throughout history as a contraceptive for women, as well as stimulation of menstruation and milk flow. I had assumed that neem was the only herb worth mentioning regarding contraception, so this is interesting. (I know a couple of women who use neem both externally and internally as a form of contraception, but I wouldn't want to take that risk, not until lots more studies are published confirming its effectiveness.)
Black Seed is very good for dozens of physical ailments, and it works pretty well for me. But I haven't used it in skin care yet. The oil has a very strong smell -- herbal and nutty and very dark. It's not the most pleasing fragrance, but I can tell it's powerful.
http://www.sweetsunnah.com/cgi-bin/category.cgi?category=blackseed_reports

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